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FOUNDATION FOR CASEYS CURE INC

Cause Area

  • Board Development
  • Community

Location

162 WELLINGTON DRLAGRANGE, GA 30241 United States

Organization Information

Mission Statement

The Foundation for Casey's Cure mission is multifaceted: -To be an advocacy platform for patients with rare forms of Muscular Dystrophy -Create a registry for HMERF patients and other rare forms of Muscular Dystrophy in order to compile a database of affected patients to support any possible research/clinical trial information. -Promote research on rare subtypes in the US and global research circles​ to be shared widely and collaboratively among and across all scientific communities.

Description

How did the foundation come about? When Casey's diagnosis was made a few years ago, we started looking for advocacy groups for her subtype, HMERF. When we found that none existed, we made it our business to start one to raise the public's awareness about muscular dystrophy, its progression, and its effect on afflicted patients and families.

to find out more, please visit our website and social media pages. We look forward to you being inspired to help us!

Reviews

Would you recommend FOUNDATION FOR CASEYS CURE INC?
1 review Write a review
by Christine D. (December 18, 2021)
Supporting The Ride for Casey’s Cure gave me an opportunity to interact with Casey’s immediate support team - her friends and family. I was also able to learn more about H-MERF and other types of Muscular Dystrophy and how science and legislation are providing support for those affected.

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