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Scleroderma and Fibrotic Diseases Foundation (SFDF)

Cause Area

  • Children & Youth
  • Community
  • Health & Medicine
  • International
  • Women

Location

1118 ALA MOANA BLVDAPT 800HONOLULU, HI 96814 United States

Organization Information

Mission Statement

The SFDF is a 501(c)(3) nonprofit organization dedicated to improving the lives of all people affected by scleroderma and other fibrotic diseases.

Description

In addition to directly helping the scleroderma and fibrotic diseases community, The SFDF aims to educate others. We spread awareness with a goal of ensuring that more people can recognize the signs of scleroderma and realize the importance of research into scleroderma and other fibrotic diseases.

Generally classified as an autoimmune rheumatic disease, scleroderma is a group of rare diseases that involve the tightening and hardening of the skin and connective tissues. In many patients, scleroderma harms structures beyond the skin, such as blood vessels, internal organs, and the digestive tract. Few effective treatments exist, and there is no cure.

We recently released the first issue of Scleroderma Stories, a publication featuring the journeys of scleroderma warriors across the world. The first issue of Scleroderma Stories has reached over 3,900 people in 78 different countries. Read here: http://issuu.com/thesfdf/docs/sclero_issue_1__pages_

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