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  • ORGANIZATION PROFILE
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  • The Haemophilia Society The Haemophilia Society

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(51.50422,-0.0916)
 

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Mission Statement

We are the only UK-wide charity for all those affected by a genetic bleeding disorder; a community of individuals and families, healthcare professionals and supporters. For almost 70 years we have campaigned for better treatment, been a source of information and support, and raised the awareness of bleeding disorders. We want to ensure that everyone affected by a bleeding disorder: Has equality of opportunity Has the opportunity to connect with others in the community     Has the knowledge to feel empowered  We do this by: Raising awareness about bleeding disorders Providing information and support throughout our members lives Influencing and advocating on health and social care policy and access to treatment  More than 32,000 men, women and children in the UK have a diagnosed bleeding disorder, and the number rises every year. Membership of The Haemophilia Society is free and open to all.

Description

We are the only UK-wide charity for everyone affected by a bleeding disorder: a community of members, supporters and healthcare professionals. Our work is driven by a small staff team, based in London and working alongside volunteers from all over the UK. We are governed by a board of trustees.

As a health charity, we work to provide easy access to information and opportunities, influence national policy and practice to make the care and treatment of bleeding disorders consistent, effective and accessible to all and enable the voices of all people with bleeding disorders to be heard.

Our strategy sets out our goals, aspirations and plans for 2015-18. It aims to make sure that everything we do improves the lives of people affected by a bleeding disorder in the UK today so we can continue to provide help and support for many years to come.

The strategy and plan was launched at our annual general meeting (AGM) in October 2013, and reflects the needs and concerns of members and local groups. We worked with our members who attended our AGM and conference in November 2014 to refine and prioritise our activity and services in the coming years.

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