• ORGANIZATION PROFILE
  • NEUROFIBROMATOSIS MICHIGAN NEUROFIBROMATOSIS MICHIGAN

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(42.96,-85.63)
 

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Mission Statement

The mission of NF Michigan is to enhance the quality of life for those affected by neurofibromatosis in Michigan.

Description

NF Michigan was established in 1985 as the Neurofibromatosis (NF) Support Group of West Michigan. In its 30+ years of existence, the organization has existed to help families learn about the disorder, learn about the available care and treatment, and support each other emotionally. Now a member group of the nationally focused NF Network, NF Michigan has moved beyond West Michigan to support programs across the state of Michigan. The organization’s programs aim to enhance the quality of life for those affected by neurofibromatosis in Michigan by assembling and promoting educational opportunities and resources, providing scholarships and personal grants for those affected by NF, hosting an annual camp and other networking opportunities for people with NF and their families, participating in national advocacy, and supporting medical research. What makes NF Michigan unique is that it is the only regional organization providing physical, financial, and emotional support to families affected by neurofibromatosis in the state of Michigan.

NF Michigan accomplishes the mission in five ways:

  • Awareness and Education
  • Scholarships and Personal Grants
  • Camps and Networking
  • Advocacy
  • Research Grants

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