During these uncertain times, how can we help?

As the world leader in volunteerism we feel a responsibility to unite our broader community, and to use this moment to become stronger.

See below to access our COVID-19 Resource Hub, and to explore our growing directory of COVID-19-specific and virtual volunteering opportunities.
Read More
  • ORGANIZATION PROFILE
  • Image_201807281213
  • FSH Society FSH Society

Causes

  • Interest area icon
  • Interest area icon
(42.47368,-71.2509)
 

Volunteer with us!

VIEW AS
Subscribe Get an RSS feed of these Opportunities
Please wait . . .

Mission Statement

The FSH Society is a non-profit charity 501(c)(3) dedicated to accelerating treatments for facioscapulohumeral muscular dystrophy. Its role is to find treatments and a cure for FSHD while empowering our families. Its Vision is a world free of the suffering caused by FSH Muscular Dystrophy (FSHD).Our Strategies are to accelerate the development of treatments and a cure for FSHD, to increase, engage and empower our stakeholders, and aggressively leverage and expand resources to support our Mission Our Core Values Research | Community | Urgency

Description

The FSH Society is the world's largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. It has catalyzed major advancements and is accelerating the development of treatments and a cure to end the pain, disability, and suffering endured by one million people worldwide who live with FSHD. The FSH Society has transformed the landscape for FSHD research, and is committed to making sure that no one faces this disease alone.

Reviews

BE THE FIRST TO RECOMMEND THIS ORGANIZATION!
Would you recommend FSH Society?