JULIAS WINGS FOUNDATION INC

Cause Area

  • Children & Youth
  • Health & Medicine

Location

PO BOX 581SHERMAN, CT 06784 United States

Organization Information

Mission Statement

The Julia’s Wings Foundation (JWF) is a 501(c)(3) non-profit organization with the mission of honoring Julia Malsin by providing assistance to families of children with the life threatening hematological diseases; aplastic anemia, MDS and PNH, raising awareness of these diseases, and funding medical research.

Description

The Julia’s Wings Foundation was established in 2013 by Mike, Heather and Alyssa Malsin. In January 2012, their beloved daughter Julia, and big sister to Alyssa, passed away after a year long battle against Aplastic Anemia, which is a rare bone marrow failure disease. Over the course of the year, Julia was hospitalized numerous times and some stays were as long as 6 to 8 weeks. She received a bone marrow transplant in October of 2011, but passed away 3 months later. Heather stopped working to care for Julia and the medical and travel expenses incurred during that time were massive. After Julia passed away, the Malsins decided to dedicate the rest of their lives to making a difference with this horrible disease. It is in Julia’s honor, that they started a foundation in her name.

The Julia’s Wings Foundation is an IRS 501(c)(3) non-profit organization, that provides financial assistance to families of children with life threatening hematological diseases and to medical professionals for healthcare research. The foundation provides financial support to these families to cover costs of travel, lodging, and other living expenses for qualified participants. In addition, Julia’s Wings Foundation seeks to promote the advancement of research for aplastic anemia through contributions to organizations and individuals dedicated to this endeavor.

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