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The Ehlers-Danlos Society

Cause Area

  • Health & Medicine
  • People with Disabilities


PO BOX 87463MONTGOMRY VLG, MD 20886 United States

Organization Information

Mission Statement

We support collaborative research and education initiatives, awareness campaigns, advocacy, community-building and care for the Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders. Our goals are worldwide awareness- and better quality of life for all those who suffer from these conditions. Research is at the center of what we do, so that one day we will have a cure. Our strength begins with hope.


The Ehlers-Danlos Society is a global community of patients, caregivers, health care professionals, and supporters, dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes and related disorders. We are a nonprofit organization, established in 1985 as the Ehlers-Danlos National Foundation


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