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The Scleroderma Foundation is a national, non-profit organization with 501(c)(3) status (Tax ID #52-1375827) established in 1998 to serve the needs of people with scleroderma in our community with a three-fold mission of support, education and research.
Scleroderma is a devastating autoimmune disorder that affects an estimated 300,000 people in the United States, yet it is not widely known and often goes undiagnosed. The symptoms vary greatly from person to person, and the effects of scleroderma can range from mild to disabling or life threatening.
The Oregon Chapter supports the Scleroderma Foundation’s three-fold mission:
- Support - We hold support group meetings where patients and family members can gain invaluable knowledge and emotional support from other patients.
- Education - We provide scleroderma patients with information, educate the public about scleroderma, offer free public educational seminars with lectures from scleroderma experts, and more.
- Research - We raise money to fund the important research into finding treatments and hopefully one day, a cure for scleroderma.
We greatly appreciate our donors and sponsors who allow us to continue to support our community and raise funds for scleroderma research.