International Autoimmune Encephalitis Society

Cause Area

  • Advocacy & Human Rights
  • Children & Youth
  • Crisis Support
  • Health & Medicine
  • International

Location

8420 SW PARKVIEW LOOPBEAVERTON, OR 97008 United States
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Organization Information

Mission Statement

Leading with integrity, the International Autoimmune Encephalitis Society strives to advance services, education, increased awareness, and research for this group of diseases. The services we provide are all-inclusive from getting a timely diagnosis to recovery and the many challenges experienced in that journey.
Raising awareness of Autoimmune Encephalitis across the many specialties of medicine that come in contact with these disorders and the public to ensure a timely and accurate diagnosis and aggressive treatment plan for best outcomes. Advancing research to find a cure.

Description

IAES services include connecting patients with free flights/discounted accommodations to medical experts on our Doctor’s list located near major medical facilities in the U.S.A. and parts of Australia. Financial advice to prevent bankruptcy, hospital overbilling, overturning treatment denials by insurance, psychiatric hold prevention, free 'First Aid Tool Kit’, a patient resource guide to managing AE. Additionally, IAES leads the community by conducting the only science-based educational support group for families and patients that provides one on one advocacy and education about this group of disorders. Understanding the disease and the treatments involved creates strong advocacy and self-advocacy skills that result in better communication with treating physicians, a key component to participating in a successful team. IAES manages the most comprehensive website on autoimmune encephalitis doctors and patients rely on worldwide.

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