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SOFIES JOURNEY INC

Cause Area

  • Children & Youth
  • Health & Medicine
  • International
  • People with Disabilities
  • Veterans & Military Families

Location

17141 MURPHY AVE STE 5CIRVINE, CA 92614 United States

Organization Information

Mission Statement

EAD is an annual event operated by the Irvine based non-profit foundation Sofie’s Journey/EAD, now in its fifth year and drawing people from across the globe. "We wanted to create an opportunity to drive epilepsy awareness, with awareness the key to overcoming challenges created by epilepsy," stated Candy Levy, Co-Founder of Sofie’s Journey/EAD. "At our event we bring together patients, physicians, advocates, non-profits, services, and this year we had a large section of the convention facility for people to meet their possible and future service dogs."

Description

Sofie’s Journey began with Sofie Levy, who had her first seizure at 5 years old. After years of pursuing treatments and options, the Levy family was given the opportunity of brain surgery for Sofie. Sofie is now in 11th grade, and is eight years seizure free. To further focus their passion for epilepsy awareness, and to ensure others are afforded great epilepsy care, Sofie’s parent’s Candy and Brad Levy created EPILEPSY AWARENESS DAY with the first event held on November 7, 2013.

"The Epilepsy Awareness Day at Disneyland has become a unique opportunity for patients with epilepsy and their caregivers to interface with non-profit and other groups to openly communicate about their needs and available services," said neurosurgeon Dr. Gary Mathern.

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