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Our mission is to educate the world about the disease Syringomyelia, Chiari Malformation, and the complications that co-exist with them. Our focus is to provide updated education to all medical specialties about these diseases through online teaching videos, conference calls, and delivery of in-services. We provide members, families, caregivers, medical professionals of all disciplines, and attorneys excellent resources to navigate Syringomyelia and Chiari with emphasis on collaboration and continuity of care across all medical specialties using patient-centered approaches that center on our mission of education.
Worldwide Syringomyelia & Chiari Task Force is a nonprofit 501c3 organization led by medical professionals who are compassionate advocates for patients living with Syringomyelia & Chiari. We provide free advocacy services for patients and their families. We also provide educational resources for medical professionals of all disciplines. We offer connection to flight services, disability dogs, advocacy tools, educational videos, medical resources, publishing opportunities, and much more!