• ORGANIZATION PROFILE
  • INADCURE FOUNDATION INC INADCURE FOUNDATION INC

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(40.888214,-74.28317)
 

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Mission Statement

The INADcure Foundation is a 501c3 nonprofit charity whose mission is to support the development of treatments, including a cure, for Infantile Neuroaxonal Dystrophy (INAD) and other forms of PLA2G6-related neurodegeneration (PLAN). We seek to educate the public about INAD and related genetic disorders, to advocate for better access to treatment, and to support the families and caregivers of children diagnosed with INAD.

Description

We are a newly formed organization that mainly consists of families and friends who volunteer to support our mission. All funds that are raised to support our mission are essentially the majority of resources dedicated to help children with this specific rare disorder.

The INADcure Foundation carries out its mission by:

  • Scientific Research: For Better Treatment & A Cure
  • Support: Connecting Families to Each Other & Helpful Resources
  • Advocacy: Raising Awareness

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