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The Cornelia de Lange Syndrome Foundation is a family support organization which exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with CdLS and others with similar characteristics make informed decisions throughout their lifetime.
The CdLS Foundation is a family support organization offering toll free help lines, annual conferences, a medical advisory committee, and a bimonthly newsletter.
- Barbara Sabaitis
- (860) 676-8166
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