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6 people are interested
Support Partner for Those with Spinal Muscular Atrophy
ORGANIZATION: SMA Outreach and Awareness Resource
This opportunity is provided by VolunteerMatch's partner.
Please visit the new page to apply.
Please visit the new page to apply.
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6 people are interested
Make a profound impact in the life of a child living with Spinal Muscular Atrophy (SMA), a rare and challenging neurodegenerative disease, by volunteering as a Support Partner in our SMA Support Mate Program. This heartfelt initiative seeks to foster hope and connection for children with SMA, who often face barriers to forming social bonds due to physical limitations.
As a Support Partner, you’ll provide consistent encouragement and companionship through flexible, virtual video calls and messaging on SOAR’s dedicated platforms. No prior experience or knowledge of SMA is necessary. Your kindness and dedication can brighten someone’s world-and leave a lasting impact.
More opportunities with SMA Outreach and Awareness Resource
No additional volunteer opportunities at this time.
About SMA Outreach and Awareness Resource
Location:
42534 Lewiston Dr, Chantilly, VA 20152, US
Mission Statement
SOAR empowers individuals with Spinal Muscular Atrophy (SMA) by addressing unmet financial needs and fostering inclusive, supportive environments. We are committed to challenging misconceptions, promoting awareness, and providing meaningful support so that those with SMA can embrace their uniqueness and strengthen their sense of independence.
Description
Our organization is a high school-led nonprofit founded by the brother of an individual with Spinal Muscular Atrophy (SMA), named Justin. Witnessing firsthand the many challenges that come with living with SMA, even with access to strong medical and emotional support, he recognized that many others face these obstacles without the same resources. Determined to make a difference, he brought together a dedicated team of high school student leaders to form a platform that supports the SMA community on multiple fronts.
Together, we aim to improve the lives of individuals with SMA through both emotional and practical support. In partnership with SMA Vietnam, we’ve raised funds to support underserved individuals with SMA in Vietnam, where the higher value of the dollar allows donations to go further. In 2024, we funded Lunar New Year gifts for children with SMA in Vietnam, helping brighten their celebrations and reduce the financial burden of the holiday season on families.
Beyond financial aid, we focus on emotional well-being through awareness campaigns and connection-based initiatives. Our 2024 SMA Awareness Month campaign reached over 200 people, sharing personal stories and interviews to build empathy and understanding. We are currently launching a buddy program, SMA Support Mates, to foster meaningful peer connections and provide emotional support for youth with SMA.
CAUSE AREAS
Children & Youth,
Health & Medicine,
People with Disabilities
WHEN
We'll work with your schedule.
WHERE
This is a Virtual Opportunity with no fixed address.
DATE POSTED
June 25, 2025
SKILLS
- Mentoring
- Mental Health
- English
- Verbal / Written Communication
- Special Needs
GOOD FOR
- Teens
REQUIREMENTS
- Must be at least 16
- 1 to 2 hours per week
- Time is spent outside of video calls planning and participating in a shared activity with your buddy. There are virtual community events that Support Partners must attend on at least on a bimonthly basis.