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12 people are interested
Social Media Specialist
ORGANIZATION: Rare Genomics Institute
This opportunity is provided by VolunteerMatch's partner.
Please visit the new page to apply.
Please visit the new page to apply.
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12 people are interested
Work remotely with talented peers on a rewarding, nonprofit program. Do good for your community while using your professional expertise. Work with talented peers on a rewarding non-profit cause related program. The Rare Genomics Institute is making a difference. RG is a nonprofit organization that helps families in need of genome research.
The social media specialist will serve as our social media ambassador and should be well-versed in social media best practices and have experience using social networking sites such as Instagram, Facebook, LinkedIn, etc. The specialist will post event information, publicize RG’s activities and publish content related to our mission. The Social Media Specialist will be skilled at writing and creating content that engages and inspires online users.
Responsibilities:
Create brand-aligned social media content for platforms including Facebook, Instagram, and LinkedIn (Posts, Carousels, Reels) in accordance with a content planner.
Brainstorm content ideas that drive awareness and engagement to the Rare Genomics brand through social media.
Collaborate with the Marketing team to research relevant trends, stories, articles, publications, and features to be used across social media and the website.
Work to create an evergreen content bank for ongoing use across major platforms.
Requirements:
Working knowledge of Canva design studio required
Familiar with basic content design principles (formatting, styling)
Basic understanding of social media operations
The ability to meet monthly deadlines for content creation (6-8 posts monthly)
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About Rare Genomics Institute
Location:
8504 Firestone Blvd., #198, Downey, CA 90241, US
Mission Statement
At RG, we are more than just an organization. We are a community dedicated to helping rare disease patients find hope for a cure. We work alongside patients and their families, providing them with the necessary tools, knowledge, and connections so that they can better understand the cause of their disease. We believe that every patient deserves more out of life.
Description
Rare Genomics Institute (RGI) is a nonprofit organization dedicated to helping rare disease
patients find a diagnosis, treatment, and pathway to a cure. Through personalized research
projects, RGI provides access to world leading medical institutions and scientists to conduct
genomic sequencing, coordinates with clinicians and counselors to interpret findings, and offers an
online crowd-funding platform to deliver financial solutions. RGI also supports rare disease
advocacy by fostering an online community of rare disease patients and supporting rare disease
research through a yearly grant competition.
Since being founded in 2011, RGI has completed over 300 genetic sequencing and analysis
projects, assisted patients fund over $3.5 million worth of genomic sequencing, discovered 8
unique genetic mutations in-house, given over $2 million dollars in grants to researchers on rare
disease, and developed an online community with over 10,000 rare disease members.
Through volunteers, RGI is able to slowly push science and health care forward to meet the needs
of patients affected by rare diseases. To learn more about RGI check out our website, like us on
Facebook, and follow us on Twitter!
CAUSE AREAS
Children & Youth,
Health & Medicine
WHEN
We'll work with your schedule.
WHERE
This is a Virtual Opportunity with no fixed address.
DATE POSTED
June 8, 2025
SKILLS
- Marketing & Communications (Mar/Com)
- Interactive/Social Media/SEO
- Social Media / Blogging
GOOD FOR
N/A
REQUIREMENTS
- 5 hours per week