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12 people are interested
RareShare Web Developer
ORGANIZATION: Rare Genomics Institute
This opportunity is provided by VolunteerMatch's partner.
Please visit the new page to apply.
Please visit the new page to apply.
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12 people are interested
Work remotely with talented peers on a rewarding, nonprofit program as part of the Rare Genomics Institute RareShare team. Build, maintain and enhance features of the RareShare.org website, an online forum for those interested in rare diseases.
As a RG Volunteer, you will be a part of the organization’s efforts to connect and educate our rare disease communities. You will help continually update and design improvements for the RareShare web-page user experience.
Position Responsibilities:
Design and implement new features and enhanced user interface of Rareshare web application.
Assist in updating website content as needed.
Troubleshoot user help requests as needed.
Support the RareShare team in accessing user and web application data.
Attend bi-weekly team conference call meetings and actively work with team members.
Desired Skills and Experience:
5-10 hour commitment each week is required for this position. This opportunity is flexible enough to work around the schedule of a full-time job.
Hands-on experience in designing, developing and/or maintaining a website.
Working knowledge of WordPress, WP Engine and BitBucket is a plus.
Strong communication and problem solving skills.
Creative thinker with excellent attention to detail.
Nice to haves:
Project management and team lead experience.
Experience scaling a production web application.
Experience in adopting artificial intelligence features to a website environment.
Position Responsibilities:
Design, maintain and implement new features and user interface enhancements for the RareShare web application.
Assist in updating RareShare content as needed.
Troubleshoot user help requests as needed.
Support the RareShare team in accessing user and web application data.
Attend bi-weekly team conference call meetings and actively work with team members.
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About Rare Genomics Institute
Location:
8504 Firestone Blvd., #198, Downey, CA 90241, US
Mission Statement
At RG, we are more than just an organization. We are a community dedicated to helping rare disease patients find hope for a cure. We work alongside patients and their families, providing them with the necessary tools, knowledge, and connections so that they can better understand the cause of their disease. We believe that every patient deserves more out of life.
Description
Rare Genomics Institute (RGI) is a nonprofit organization dedicated to helping rare disease
patients find a diagnosis, treatment, and pathway to a cure. Through personalized research
projects, RGI provides access to world leading medical institutions and scientists to conduct
genomic sequencing, coordinates with clinicians and counselors to interpret findings, and offers an
online crowd-funding platform to deliver financial solutions. RGI also supports rare disease
advocacy by fostering an online community of rare disease patients and supporting rare disease
research through a yearly grant competition.
Since being founded in 2011, RGI has completed over 300 genetic sequencing and analysis
projects, assisted patients fund over $3.5 million worth of genomic sequencing, discovered 8
unique genetic mutations in-house, given over $2 million dollars in grants to researchers on rare
disease, and developed an online community with over 10,000 rare disease members.
Through volunteers, RGI is able to slowly push science and health care forward to meet the needs
of patients affected by rare diseases. To learn more about RGI check out our website, like us on
Facebook, and follow us on Twitter!
CAUSE AREAS
Children & Youth,
Health & Medicine
WHEN
We'll work with your schedule.
WHERE
This is a Virtual Opportunity with no fixed address.
DATE POSTED
June 5, 2025
SKILLS
- Website Programming
- Web Design
- Web Design / UX
GOOD FOR
N/A
REQUIREMENTS
- 5 hours per week