Volunteer Stories Writer

Save to Favorites

Department: Community Support
Location: Remote
Time Commitment: Flexible, approximately 1-3 hours per week
Reports To: Deborah Bircham - Community Support Coordinator

About Mast Cell Action
Mast Cell Action is a charity dedicated to supporting individuals living with Mast Cell Activation Syndrome (MCAS), raising awareness, advancing understanding through education and resources and advocating for better recognition and treatment of MCAS within the medical community and the wider world.
Our stories are a key part of our community support, providing validation and reassurance to those living with MCAS, their families and carers, and helping to advocate for their needs to the medical professionals who look after them.

Main purposes of role
We are seeking a Volunteer Stories Writer to join our Community Stories team. You will play a vital role in capturing and sharing the lived experiences of individuals with MCAS. This project aims to provide a voice to those affected, helping both the MCAS community and medical professionals better understand the real-world impact of the condition.

Key tasks
* Collate emailed stories submitted by community members living with MCAS.
* Transcribe, edit, and proofread stories with accuracy and sensitivity.
* Adapt patient stories for different audiences, ensuring an empathetic and engaging tone for the MCAS community and a more structured, medical-focused version for healthcare professionals.
* Maintain high standards of spelling, grammar, and clarity in all written content.
* Work closely with the Community Support Coordinator to ensure consistency and alignment with the charity’s goals.
* Upload approved stories to the charity’s website.

Skills and Experience
* Excellent writing, editing, and proofreading skills, with strong attention to detail.
* Ability to write with empathy and sensitivity to the challenges faced by individuals with MCAS.
* Experience in storytelling, journalism, or content writing.
* Ability to adapt narratives for different audiences, particularly medical professionals.
* Strong understanding of tone, voice, and structure in written content.
* Familiarity with basic website content management systems (preferred but not essential).

Key results/objectives
The regular updating of our Community Stories website with stories that validate our community members’ experiences, and provide positive and uplifting stories of hope.
Those living with MCAS feel heard and seen, and validated. They have access to a library of others’ experiences that help them to navigate their own journey.
The creation of Medical Stories which can be used to educate medical professionals about the experiences of those living with MCAS, and lobby for systemic change in diagnosis and treatment.
Improving the quality of life of people with MCAS through access to information and support.

What We Offer
The chance to make a meaningful difference for people living with MCAS.
Flexible, remote volunteering to suit your availability.
Opportunities to develop your skills and experience in writing and content creation.
A supportive and inclusive environment.

If you are passionate about writing meaningful stories and want to contribute to a worthwhile cause, we’d love to hear from you!