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2025 MSMDS State of Research Conference

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ORGANIZATION: ACTA2 Alliance

  • A group opportunity. Invite your friends.
  • Spots available: 1
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A medical conference hosted by ACTA2 Alliance to provide families and clinicians, physicians and researchers in the community an update on the state of research for a treatment, updated information about Multisystemic Smooth Muscle Dysfunction Syndrome and what the near future may look like.

More opportunities with ACTA2 Alliance

No additional volunteer opportunities at this time.

About ACTA2 Alliance

Location:

4 Dawes Terrace, Hanscom AFB, MA 01731, US

Mission Statement

To advocate for patients and families living with Multisystemic Smooth Muscle Dysfunction Syndrome (MSMDS), a rare disease caused by an ACTA2 genetic mutation.

Description

Foundation for Multisystemic Smooth Muscle Dysfunction Syndrome. Helps provide information to and connect families, researchers and clinicians interested in and involved in the community.

CAUSE AREAS

Advocacy & Human Rights
Children & Youth
Health & Medicine
Advocacy & Human Rights, Children & Youth, Health & Medicine

WHEN

Thu Jun 05, 2025 - Sat Jun 07, 2025
08:00 AM - 04:00 PM

WHERE

50 Ferncroft RoadDanvers, MA 01923

(42.59733,-70.96886)
 

SKILLS

  • Child Care
  • Children Medical Services
  • Music Arts
  • Interactive/Social Media/SEO
  • IT Management
  • Painting

GOOD FOR

  • Teens
  • People 55+
  • Public Groups
  • Private Groups

REQUIREMENTS

  • Driver's License Needed
  • Background Check
  • Must be at least 20
  • We need all day commitments but depending on how many volunteers have interest, we can discuss shifts.
  • Be patient and kind. Will mostly be working with children of all ages, abilities and needs, assisting with crafts, games, etc. May need assistance with video/audio/technology in the main room where families and medical professionals will be.

Private Group Details

  • Group Size Range 5 - 20
  • Event can be held at organization location(s)
  • No Donation

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