Volunteer for a Walk event to support those affected by a genetic disorder (NF)

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About NEUROFIBROMATOSIS INCORPORATED NORTHEAST

Location:

9 BEDFORD ST, Burlington, MA 01803, US

Mission Statement

To bring hope to those affected by neurofibromatosis and allied disorders.

Description

We are a non-profit health organization that has advocated for those with neurofibromatosis since our founding in 1988. Our vision is a world where the burden of the genetic disorder known as neurofibromatosis (NF) does not exist. We seek to accomplish this vision through advocacy, raising awareness, and providing support for those affected by NF and allied disorders.

NF Northeast is involved in every aspect of the NF journey. Our primary focus is providing resources to those affected by NF in the form of mentorship programs, scholarships, educational opportunities, online support communities, and more. We are also committed to finding treatments - and a cure - for NF by supporting medical research through our grant programs. We are proud to advocate for federal NF research funding by lobbying Congress on a national level.

Ultimately, NF Northeast is dedicated to creating a community of hope and support for patients, families, and all those affected by neurofibromatosis. We are here to help everyone navigate their journey with NF.