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  • A group opportunity. Invite your friends.
 

Nonprofit Family Conference Event Helper

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ORGANIZATION: United Leukodystrophy Foundation

  • A group opportunity. Invite your friends.
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The United Leukodystrophy Foundation (ULF) is excited to announce our Annual Family Conference, scheduled for June 26-28, 2025, at the Eaglewood Resort & Spa in Itasca, Illinois.

This event serves as a vital platform for education, collaboration, and advocacy, bringing together families, medical professionals, and researchers within the leukodystrophy community.

To ensure the success of this conference, we are seeking dedicated volunteers to assist in various capacities. Opportunities include:

  • Conference Support: Assisting with event setup, registration, guiding attendees, and providing general support throughout the conference.

  • Kids Room Supervision: Overseeing activities for children aged 5 and up, including games, arts and crafts, bowling, and movies, ensuring a safe and enjoyable environment.

Your involvement would be instrumental in creating a welcoming and informative experience for all attendees. If you are interested in volunteering or would like more information, please contact us directly at our office email

Thank you for considering this opportunity to contribute to the leukodystrophy community. We look forward to the possibility of working together to make the 2025 Family Conference a memorable and impactful event.

1 Shift

  • Thu Jun 26, 2025 - 08:00 AM to 12:00 PM CST - Spots available: 10+

More opportunities with United Leukodystrophy Foundation

No additional volunteer opportunities at this time.

About United Leukodystrophy Foundation

Location:

2304 Highland Drive, Sycamore, IL 60178, US

Mission Statement

The United Leukodystrophy Foundation is dedicated to helping children and adults who have leukodystrophy or other white matter disorders and assisting the family members, professionals and support services that serve them. The ULF is committed to the identification, treatment and cure of all leukodystrophies through programs of education, advocacy, research and service.

Description

The United Leukodystrophy Foundation is a non-profit, voluntary health organization incorporated in 1982. The Foundation works with families and researchers in over 40 countries to increase public awareness of the leukodystrophies; to promote and support research of the leukodystrophies; to provide leukodystrophy patients and families with information about the disease and to assist them in referrals for medical care, social services and genetic counseling and to coordinate a communication network among affected families; to coordinate cooperation between donor agencies, governmental agencies and scientific programs with the private sector.

CAUSE AREAS

Children & Youth
Health & Medicine
People with Disabilities
Children & Youth, Health & Medicine, People with Disabilities

WHEN

Thu Jun 26, 2025 - Sat Jun 28, 2025
07:00 AM - 09:00 PM
This opportunity has 1 shift

WHERE

Eaglewood Resort & Spa1401 Nordic RoadItasca, IL 60143

(41.95835,-88.03973)
 

SKILLS

  • Youth Services
  • Family Therapy
  • Child Care
  • Event Management
  • Group Facilitation
  • Child Development

GOOD FOR

  • Teens
  • People 55+
  • Public Groups

REQUIREMENTS

  • This is a Done in a Day opportunity and there is no prior training or ongoing commitment needed.
  • Must be at least 16
  • Orientation or Training
  • 4 hours per shift. 3 shifts available per day.
  • If volunteering for the kids room, there is a requirement of having a background check or you hold a certificate from a previous organization that works with children, or hold a teaching certificate or medical field certificate.

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