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Facebook Member Supporters

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ORGANIZATION: Mast Cell Action

Main purpose of job: The Facebook Member Supporters plays a crucial role in creating a safe, supportive, and engaging environment for members of Mast Cell Action’s Adult and Parent/Carer support groups. This volunteer position focuses on ensuring that the group remains a positive and informative space, while upholding group rules, safeguarding members, and representing the charity with empathy and care.

Department: Community Engagement

Weekly Hours: 4+

Position reports to: Community Engagement Coordinator

Salary: N/A - Voluntary

Key tasks include:

Membership Management: Review and approve or decline group membership requests.

Group Rule Enforcement: Familiarise yourself with group rules and ensure they are upheld. This involves deleting posts or comments that break group rules, providing feedback to members, issuing warnings, suspensions and bans.

Charity Representation: Engage with members regularly by commenting on posts with empathy and support. This may involve referring members to Mast Cell Action resources and events as appropriate.

Post Approval

Safeguarding: Act promptly on posts that may indicate a safeguarding issue, following our internal policies and procedures.

Escalation & Communication of issues your supervisor

Skills and Experience:

Strong understanding of Facebook group functionality (approving members, moderating posts, managing comments).
Excellent communication and interpersonal skills.
Empathy, patience, and the ability to engage with people experiencing health challenges.
Commitment to upholding group rules and creating a positive, inclusive space.
Awareness of safeguarding principles and willingness to escalate concerns.

Support and Training:

Member Supporters will receive an induction and ongoing support from Mast Cell Action staff.
Access to a WhatsApp group for moderators to communicate, share concerns, and seek advice.
Regular check-ins to provide feedback, celebrate successes, and address any challenges.

Key Objectives: By volunteering as a Facebook Member Supporter, you’ll help create a safe, compassionate, and empowering space for people with MCAS and their families, fostering community and reducing isolation.

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About Mast Cell Action

Location:

6 Willes Terrace, Leamington Spa, Warwickshire, cv31 1dl, GB

Mission Statement

Our vision is to ensure that everybody suffering from MCAS in the UK receives adequate support, can expect knowledgeable diagnosis & care, and can look to a future in which the disease is actively researched, better understood and more effectively treated. In sum we aim to improve the lives of MCAS sufferers by giving them a voice, recruiting and supporting doctors & researchers, and lobbying policy-makers.

Description

We are a rare diseases charity established at the end of 2015 to respond to Mast Cell Activation Syndrome (MCAS). MCAS is a crippling, unpredictable and frightening condition affecting the immune system. Sufferers from MCAS have "wrongly programmed" immune systems that react to a wide range of triggers including food, drink, stress, temperature and many others. The effects range from unpleasant allergic reactions, through to an overall debilitation resulting in people being unable to leave their houses. It was first recognised internationally in 1990, with a set of diagnostic criteria agreed in 2011, but is little known or understood in the UK, where incidence seems to be increasing. Here patients can wait 3-5 years for a diagnosis, often receive very little knowledge or help from within the medical establishment and can find themselves in a frightening limbo. (More on the disease can be found on our website: www.mastcellaction.org or on Facebook

CAUSE AREAS

Community
Computers & Technology
People with Disabilities
Community, Computers & Technology, People with Disabilities

WHEN

We'll work with your schedule.

WHERE

This is a Virtual Opportunity with no fixed address.

SKILLS

GOOD FOR

N/A

REQUIREMENTS

N/A

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