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Volunteer Digital Communications Coordinator

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ORGANIZATION: Mast Cell Action

  • 4 people are interested

Location: Remote
Commitment: Flexible, approximately 3-5 hours per week
Reports to: Faye Burgess, Community Support Coordinator

Role Summary:

Mast Cell Action is looking for a dedicated and detail-oriented Volunteer Newsletter Coordinator to manage our weekly newsletter for our Friends community. This role involves planning, compiling, and distributing engaging content that informs and supports our audience. The coordinator may also oversee additional newsletters for other key groups within Mast Cell Action. Full training will be provided with ongoing support.

Key Responsibilities:

  • Newsletter Management: Plan, source, and compile content for the weekly Friends newsletter, ensuring it is engaging, well-structured, and aligned with Mast Cell Action’s brand and tone.
  • Collaboration & Engagement: Work with internal teams to gather updates, distribute newsletters via email marketing platforms, and review audience feedback to improve engagement.
  • Expansion & Coordination: Support or manage additional newsletters as needed, maintaining consistency in messaging and formatting.

Skills & Experience:

  • Strong written communication and editing skills.
  • Experience with email marketing platforms (preferred but not essential).
  • Ability to organise content and manage deadlines.
  • Attention to detail and an understanding of audience engagement.
  • Passion for supporting people with MCAS and aligned with Mast Cell Action’s mission.

Outcomes

Community Engagement & Support

  • Deliver a well-structured, engaging weekly newsletter to keep our Friends community informed and connected.
  • Improve audience interaction by refining content based on feedback and analytics.

Consistent & Effective Communication

  • Ensure newsletters align with Mast Cell Action’s brand, tone, and messaging.
  • Collaborate with internal teams to share timely and relevant updates.

Growth & Development

  • Support or coordinate additional newsletters to reach wider audiences.
  • Enhance overall communication strategies through improved content and engagement.

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About Mast Cell Action

Location:

6 Willes Terrace, Leamington Spa, Warwickshire, cv31 1dl, GB

Mission Statement

Our vision is to ensure that everybody suffering from MCAS in the UK receives adequate support, can expect knowledgeable diagnosis & care, and can look to a future in which the disease is actively researched, better understood and more effectively treated. In sum we aim to improve the lives of MCAS sufferers by giving them a voice, recruiting and supporting doctors & researchers, and lobbying policy-makers.

Description

We are a rare diseases charity established at the end of 2015 to respond to Mast Cell Activation Syndrome (MCAS). MCAS is a crippling, unpredictable and frightening condition affecting the immune system. Sufferers from MCAS have "wrongly programmed" immune systems that react to a wide range of triggers including food, drink, stress, temperature and many others. The effects range from unpleasant allergic reactions, through to an overall debilitation resulting in people being unable to leave their houses. It was first recognised internationally in 1990, with a set of diagnostic criteria agreed in 2011, but is little known or understood in the UK, where incidence seems to be increasing. Here patients can wait 3-5 years for a diagnosis, often receive very little knowledge or help from within the medical establishment and can find themselves in a frightening limbo. (More on the disease can be found on our website: www.mastcellaction.org or on Facebook

CAUSE AREAS

Community
Media & Broadcasting
People with Disabilities
Community, Media & Broadcasting, People with Disabilities

WHEN

We'll work with your schedule.

WHERE

This is a Virtual Opportunity with no fixed address.

SKILLS

  • Administrative Support
  • Program Management
  • Basic Computer Skills
  • Database Administration
  • Analytics

GOOD FOR

N/A

REQUIREMENTS

N/A

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