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Social Media Volunteer

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ORGANIZATION: SPATA FOUNDATION INC

  • 2 people are interested
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I'm looking for someone to volunteer to help us create social media content, ideally a good campaign for Rare Disease Day February 28th.

Our organization represents approximately 150 children diagnosed world-wide with these conditons. We use social media to raise awareness & drive donations. I need someone to help create content.


I can provide photos & lots of info can be found on our website and on NORD for rare disease day.

More opportunities with SPATA FOUNDATION INC

No additional volunteer opportunities at this time.

About SPATA FOUNDATION INC

Location:

20 LLAMA TRL, PALM COAST, FL 32164, US

Mission Statement

The SPATA Foundation's Mission is to advocate, educate, and raise funds for research towards SPATA5 and SPATA5L1 Related Disorders. Our hope is that our efforts will help us better understand the function of the genes & lead to treatment for disorders related to these genes.

Description

The SPATA Foundation was began by the George family after their son Luca was diagnosed with SPATA5L1, an ultra-rare genetic condition characterized by epilepsy, hearing loss, developmental delay, and more. They began the foundation in November 2023 and have already secured mouse models for research & are working on translational studies to find a cure.

CAUSE AREAS

Children & Youth
Health & Medicine
People with Disabilities
Children & Youth, Health & Medicine, People with Disabilities

WHEN

We'll work with your schedule.

WHERE

This is a Virtual Opportunity with no fixed address.

SKILLS

  • Interactive/Social Media/SEO
  • Graphic Design
  • Social Media / Blogging

GOOD FOR

  • Teens

REQUIREMENTS

  • Driver's License Needed
  • Must be at least 16
  • Non Specific
  • We require a small portfolio or examples of social media content/campaigns you've done.

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