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  • A group opportunity. Invite your friends.
  • 12 people are interested
 

Raleigh Run for Rare 5K

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ORGANIZATION: NATIONAL MPS SOCIETY INC

  • A group opportunity. Invite your friends.
  • 12 people are interested
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The National MPS Society is seeking volunteers to assist with our Raleigh Run for Rare on Saturday, March 29, 2025. This 5K Run and 1-Mile Walk will take place at Lake Crabtree Park in Morrisville, NC. Please complete this form to receive updates and additional information regarding volunteer responsibilities.

Volunteers are needed between 6:15 am and 11:30 am. Registration set up, course set up, parking assistance, picnic set up, course guides, lunch service, and clean up are a few of the many spaces we need your help. If you have interest in a specific area or have a certain time you are available please let us know in the comment section below.

Thank you very much for your support of the Society!

Location: Lake Crabtree Park

1400 Aviation PkwyMorrisville, NC 27560

Race Schedule:
7:30 AM: Packet Pickup Begins
9:00 AM: 5K Race Start Time
9:15 AM: 1 Mile Walk

To learn more about the Raleigh Run for Rare, please visit our registration website, tinyurl.com/RunForRare2025.


Contact: Bethany Greene, bethany@mpssociety.org

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About NATIONAL MPS SOCIETY INC

Location:

PO BOX 14686, DURHAM, NC 27709, US

Mission Statement

The National MPS Society exists to find cures, support and advocate for MPS and ML.

Description

Mucopolysaccharidoses (MPS) and related diseases are genetic lysosomal storage diseases (LSD) caused by the body's inability to produce specific enzymes. Normal ly, the body uses enzymes to break down and recycle materials in cells. In individuals with MPS and related diseases, the missing or insufficient enzyme prevents the proper recycling process, resulting in the storage of materials in virtually every cell of the body. As a result, cells do not perform properly and may cause progressive damage throughout the body, including the heart, bones, joints, respiratory system and central nervous system. While the disease may not be apparent at birth, signs and symptoms develop with age as more cells become damaged by the accumulation of cell materials.

CAUSE AREAS

Children & Youth
Health & Medicine
People with Disabilities
Children & Youth, Health & Medicine, People with Disabilities

WHEN

Sat Mar 29, 2025
06:30 AM - 12:00 PM

WHERE

Lake Crabtree Park1400 Aviation ParkwayMorrisville, NC 27560

(35.84507,-78.79437)
 

SKILLS

GOOD FOR

  • Teens
  • People 55+
  • Public Groups

REQUIREMENTS

  • Must be at least 10
  • Up to 6 hours

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