NF Midwest Board Secretary

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Do you want to make a difference in the lives of individuals and families affected by rare diseases or health conditions? NF Midwest is seeking an organized and caring individual to serve as Board Secretary on our volunteer Board of Directors.

NF Midwest works to improve the lives of people impacted by neurofibromatosis (NF) and schwannomatosis, including NF1, NF2-Related schwannomatosis, and other schwannomatosis conditions. Our focus is on improving care, providing education and support, and ensuring that No One Fights Alone.

As a Board Member, you will:

• Help direct and advise the organization.
• Provide fiduciary oversight.
• Discuss and vote on initiatives, grants, programs, and other important matters.

As the Secretary, your responsibilities will include:

• Recording accurate meeting minutes during quarterly board meetings.
• Preparing and distributing minutes after meetings.
• Collaborating with the Board Chair to develop and distribute meeting agendas.

Board meetings are held quarterly in St. Charles, Illinois, with the option to join remotely.

We encourage board members to stay engaged by volunteering for additional tasks or participating in committees that align with their skills and interests.

This role is ideal for someone who:

• Is passionate about supporting people with rare diseases or health conditions.
• Is organized, detail-oriented, and dependable.
• Enjoys working collaboratively to help drive meaningful change.

This is an opportunity to use your skills and passion to create a tangible impact on the lives of individuals and families navigating the challenges of neurofibromatosis and related conditions.

If you’re interested in joining our mission, please contact [insert contact information] to learn more.

Together, we can ensure that No One Fights Alone with NF.