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2 people are interested
Grant Writer
ORGANIZATION: ABETALIPOPROTEINEMIA AND RELATED DISORDERS FOUNDATION
This opportunity is provided by VolunteerMatch's partner.
Please visit the new page to apply.
Please visit the new page to apply.
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2 people are interested
Patient advocacy nonprofit dedicated to a community of ultra rare disease patients would like to find someone skilled in writing grant proposals who can help us, or teach us how to write grant proposals.
This is a virtual opportunity with no set time frame or deadline. We're working on finding grants to apply for. This grant writing opportunity may be ongoing but with no specific schedule as we'll need the help when we find grants to apply for.
More opportunities with ABETALIPOPROTEINEMIA AND RELATED DISORDERS FOUNDATION
No additional volunteer opportunities at this time.
About ABETALIPOPROTEINEMIA AND RELATED DISORDERS FOUNDATION
Location:
1300 Saratoga Avenue, Unit 1010, VENTURA, CA 93003, US
Mission Statement
he ABL+ Foundation is dedicated to improving the lives of families living with rare disorders known as: Abetalipoproteinemia Familial Hypobetalipoproteinemia Chylomicron Retention Disease
Description
Abetalipoproteinemia and Related Disorders Foundation is a non-profit, volunteer organization that provides guidance on needed scientific research, diagnosis, and management of abetalipoproteinemia and related hypolipidemias, such as chylomicron retention disease and familial hypobetalipoproteinemia. Because these are very rare illnesses, there is limited research and no cure. Patients can sometimes go undiagnosed for years, and insurance companies may not recognize treatments.
Dr. Mahmood Hussain, a researcher, received several emails from patients and caregivers to seek help with diagnosis, treatment, and other resources. Together with Dr. Richard Deckelbaum, he conceived the concepts of the foundation to spread awareness of the disease, encourage research, find treatments, and advocate for patient needs. Patients, caregivers, researchers, and medical doctors from three different countries came together in 2019 to tackle these issues.
CAUSE AREAS
Advocacy & Human Rights,
Health & Medicine,
People with Disabilities
WHEN
We'll work with your schedule.
WHERE
This is a Virtual Opportunity with no fixed address.
DATE POSTED
December 31, 2024
SKILLS
- Grant Writing / Research
GOOD FOR
- Teens
REQUIREMENTS
- Must be at least 18
- Flexible depending on when grant proposals are needed
- Experience writing grant proposals required. Prefer experience writing proposals relating to patient advocacy. Exoeruebce writing grant proposals for government grants highly desired.