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3 people are interested
Volunteer PIF Tick Coordinator
ORGANIZATION: Mast Cell Action
Please visit the new page to apply.
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3 people are interested
Purpose: To guide the charity through the PIF Tick accreditation process, ensuring compliance with the standards and liaising with relevant team members to gather necessary documentation and information.
Key Tasks:
ยท Research and Understand PIF Tick Requirements: Familiarise with all criteria for the PIF Tick to create a roadmap for accreditation.
- Documentation Management: Collect, organise, and verify documents and policies needed for the application.
- Team Collaboration: Coordinate with different teams (e.g., operations, comms) to ensure alignment with PIF standards.
- Timeline Oversight: Develop and manage a timeline for application stages, tracking progress and flagging any delays.
- Quality Assurance: Review existing materials and website content and recommend improvements to meet the accreditation criteria
Key Responsibility:
- Experience in project management or quality assurance
- Familiarity with healthcare or health information standards (helpful but not required)
- Experience with the PIF Ticket accreditation process (desired not essential)
- Strong organisational and communication skills
3 More opportunities with Mast Cell Action
Opportunities
About Mast Cell Action
Location:
6 Willes Terrace, Leamington Spa, Warwickshire, cv31 1dl, GB
Mission Statement
Our vision is to ensure that everybody suffering from MCAS in the UK receives adequate support, can expect knowledgeable diagnosis & care, and can look to a future in which the disease is actively researched, better understood and more effectively treated. In sum we aim to improve the lives of MCAS sufferers by giving them a voice, recruiting and supporting doctors & researchers, and lobbying policy-makers.
Description
We are a rare diseases charity established at the end of 2015 to respond to Mast Cell Activation Syndrome (MCAS). MCAS is a crippling, unpredictable and frightening condition affecting the immune system. Sufferers from MCAS have "wrongly programmed" immune systems that react to a wide range of triggers including food, drink, stress, temperature and many others. The effects range from unpleasant allergic reactions, through to an overall debilitation resulting in people being unable to leave their houses. It was first recognised internationally in 1990, with a set of diagnostic criteria agreed in 2011, but is little known or understood in the UK, where incidence seems to be increasing. Here patients can wait 3-5 years for a diagnosis, often receive very little knowledge or help from within the medical establishment and can find themselves in a frightening limbo. (More on the disease can be found on our website: www.mastcellaction.org or on Facebook
CAUSE AREAS
WHEN
WHERE
This is a Virtual Opportunity with no fixed address.
DATE POSTED
November 9, 2024
SKILLS
GOOD FOR
N/A
REQUIREMENTS
N/A