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1 person is interested
Virtual IEP Consultant
ORGANIZATION: CYFIP2 NETWORK INC
This opportunity is provided by VolunteerMatch's partner.
Please visit the new page to apply.
Please visit the new page to apply.
-
1 person is interested
This is a virtual volunteer opportunity providing consultation services to families navigating the IEP process for a child with a CYFIP2 condition. This role would review IEP documents and advocate for essential services.
Advocating for a child with a rare condition can be difficult without a shared understanding of how the condition affects children and what services are needed. You role as an IEP consultant would enable families to advocate for these services to ensure academic success.
Families would contact you directly through an addition on our website to schedule virtual consultation. We ask for a minimum of 3 hours per week availability, however, that does not guarentee that families will need 3 hours each week.
1 More opportunity with CYFIP2 NETWORK INC
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About CYFIP2 NETWORK INC
Location:
331 ASHEFORD WAY, CAMERON, NC 28326, US
Mission Statement
Our mission is to raise awareness and support children, families and research of CYFIP2 Early Infantile Epileptic Encephalopathy.
Description
At 2 months old, our son was diagnosed with CYFIP2 Early Infantile Epileptic Encephalopathy (EIEE). CYFIP2 EIEE is an ultra-rare, pediatric, neurodevelopmental condition that causes severe and frequent drug resistant seizures, neutropenia, hypotonia, vision impairments and more. We are a volunteer, parent-run organization on a mission to raise awareness and fundraise in support of research for the development of treatments that target the CYFIP2 gene.
CAUSE AREAS
Advocacy & Human Rights,
Education & Literacy,
People with Disabilities
WHEN
Thu Nov 07, 2024 - Wed Feb 05, 2025
WHERE
This is a Virtual Opportunity with no fixed address.
DATE POSTED
November 7, 2024
SKILLS
- Youth Services
- Child Development
- Relationship Building
- Special Needs
GOOD FOR
- People 55+
REQUIREMENTS
- Background Check
- Must be at least 21
- Orientation or Training
- 3 hours weekly
- There is no guarantee that you will need to be available for 3 hours each week. We only ask this as a minimum availability requirement. Actual time spent volunteering would be dependent on your scheduling with families.