• 18 people are interested

Business Development Associate

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ORGANIZATION: Rare Genomics Institute

  • 18 people are interested

Work remotely with talented peers on a rewarding, nonprofit program. Do good for your community while using your professional expertise. Work with talented peers on a rewarding non-profit cause related program. The Rare Genomics Institute (RG) is making a difference. RG is an international nonprofit organization that helps families in need of genome research.

The Business Development Associate will support and maintain development initiatives, including RareWear (a digital health program to connect wearable medical device companies with rare disease families), informatic platforms, genetic counselor networks, etc.

The Business Development Associate will spearhead development efforts alongside cross-functional teams within RG, such as Marketing, Informatics, and Patient Advocacy teams.

Position Responsibilities:

  • Participate in international strategy development, outreach, market research, and material development (i.e. pitch decks).

  • Conduct business development activities, identifying the appropriate contacts within the corporation to contact and securing a meeting to present partnership opportunities

  • Create and implement lead generation strategies and campaigns working towards achieving the Rare Genomics mission

  • Research and identify a list of prospective partners that align with Rare Genomics Institute’s mission

  • Conduct landscape assessments on global rare disease markets for latest wearable device technologies

Desired Skills and Experience:

  • Bachelor’s degree in life-sciences or business related field preferred.

  • Experience in lead generation campaigns preferred.

  • Developing market entry strategies for emerging global markets preferred.

  • Excellent written and verbal communication skills.

  • 2-5 hour commitment each week (required).

  • Work collaboratively and independently to achieve stated goals.

  • Ability to thrive in a fast-paced, self-starter environment.

Nice to Have

  • Knowledge of corporate businesses and potential partners.

  • Sensitivity to working with culturally diverse constituents.

  • Willingness to roll up your sleeves and go above and beyond. Ideally experienced with a lean organization

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About Rare Genomics Institute


8504 Firestone Blvd., #198, Downey, CA 90241, US

Mission Statement

At RG, we are more than just an organization. We are a community dedicated to helping rare disease patients find hope for a cure. We work alongside patients and their families, providing them with the necessary tools, knowledge, and connections so that they can better understand the cause of their disease. We believe that every patient deserves more out of life.


Rare Genomics Institute (RGI) is a nonprofit organization dedicated to helping rare disease
patients find a diagnosis, treatment, and pathway to a cure. Through personalized research
projects, RGI provides access to world leading medical institutions and scientists to conduct
genomic sequencing, coordinates with clinicians and counselors to interpret findings, and offers an
online crowd-funding platform to deliver financial solutions. RGI also supports rare disease
advocacy by fostering an online community of rare disease patients and supporting rare disease
research through a yearly grant competition.

Since being founded in 2011, RGI has completed over 300 genetic sequencing and analysis
projects, assisted patients fund over $3.5 million worth of genomic sequencing, discovered 8
unique genetic mutations in-house, given over $2 million dollars in grants to researchers on rare
disease, and developed an online community with over 10,000 rare disease members.
Through volunteers, RGI is able to slowly push science and health care forward to meet the needs
of patients affected by rare diseases. To learn more about RGI check out our website, like us on
Facebook, and follow us on Twitter!


Children & Youth
Health & Medicine
Children & Youth, Health & Medicine


We'll work with your schedule.


This is a Virtual Opportunity with no fixed address.


  • Business Development & Sales Management
  • Business Development
  • Market Research / Analysis
  • Grant Writing / Research
  • Resource Development / Management




  • 5 hours per week

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