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4 people are interested
Social Media Specialist
ORGANIZATION: Pathways for Rare and Orphan Studies
Please visit the new page to apply.
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4 people are interested
We are looking for support to help disseminate information about the Patient Registry for certain rare disorders. Disorders are those caused by mutations in FGFR genes resulting in craniosynostosis. Experience with Facebook and X required. Expectation is 3-4 hours per week.
More opportunities with Pathways for Rare and Orphan Studies
No additional volunteer opportunities at this time.
About Pathways for Rare and Orphan Studies
Location:
3817 Calle Tiburon, San Clemente, CA 92672, US
Mission Statement
Pathways for Rare and Orphan Studies (PROS) Foundation is committed to helping rare disease focused patient advocacy groups and prepare them for clinical trials.
Description
PROS Foundation (Pathways for Rare and Orphan Studies) is a non-profit committed to connecting with rare disease focused patient advocacy groups to guide them towards readiness for natural history studies or the clinical trial phase. It's our heart's passion to help these groups achieve their vision.
CAUSE AREAS
WHEN
WHERE
This is a Virtual Opportunity with no fixed address.
DATE POSTED
June 6, 2024
SKILLS
- Verbal / Written Communication
GOOD FOR
- Teens
REQUIREMENTS
- Must be at least 16
- 3-4 hours/week
- Experience with Facebook and X