• 3 people are interested
 

Social Media Specialist

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ORGANIZATION: Pathways for Rare and Orphan Studies

  • 3 people are interested
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We are looking for support to help disseminate information about the Patient Registry for certain rare disorders. Disorders are those caused by mutations in FGFR genes resulting in craniosynostosis. Experience with Facebook and X required. Expectation is 3-4 hours per week.

More opportunities with Pathways for Rare and Orphan Studies

No additional volunteer opportunities at this time.

About Pathways for Rare and Orphan Studies

Location:

3817 Calle Tiburon, San Clemente, CA 92672, US

Mission Statement

Pathways for Rare and Orphan Studies (PROS) Foundation is committed to helping rare disease focused patient advocacy groups and prepare them for clinical trials.

Description

PROS Foundation (Pathways for Rare and Orphan Studies) is a non-profit committed to connecting with rare disease focused patient advocacy groups to guide them towards readiness for natural history studies or the clinical trial phase. It's our heart's passion to help these groups achieve their vision.

CAUSE AREAS

Health & Medicine
Health & Medicine

WHEN

We'll work with your schedule.

WHERE

This is a Virtual Opportunity with no fixed address.

SKILLS

  • Verbal / Written Communication

GOOD FOR

  • Teens

REQUIREMENTS

  • Must be at least 16
  • 3-4 hours/week
  • Experience with Facebook and X

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