EDS West Connect is seeking a Board Secretary

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For the past 12 years, the founding members of EDS West Connect have been raising awareness of Ehlers Danlos Syndrome and providing support and advocacy to EDS patients and the medical community. In 2023, we officially became a 501c3 nonprofit. EDS West Connect is dedicated to the empowerment & protection of EDSers, by providing valuable education, outreach and advocacy to patients and their support networks so that people with EDS can do more than just survive, they can thrive. To learn more about us, please visit our website here

Expectations of the Board as a Whole

As a member of the EDS West Connect Board of Directors, you will be expected to:

- Actively participate in board meetings, committee meetings, and special events.

- Provide strategic guidance and oversight to advance the organization's mission and goals.

- Serve as an ambassador for EDS West Connect, advocating for the needs of individuals and families affected by EDS.

- Contribute to fundraising efforts and help secure financial resources to support our programs and services.

- Collaborate with fellow board members, staff, and volunteers to achieve organizational objectives.

- Adhere to ethical and legal standards, including fiduciary responsibilities, in governing the organization.

Qualifications of Individual Board Member

Required

Preferred

Creating and maintaining accurate and detailed meeting minutes that include notes on discussions, voting results etc.

Previous experience serving on a nonprofit board or volunteer committee.

Excellent communication and interpersonal skills. Ability to work collaboratively as part of a team.

Experience working with Google Docs and other Google platforms.

Handling assigned telephone communications.

Knowledge of EDS or related conditions, or a willingness to learn about the unique challenges faced by individuals living with these conditions.

Document Management

Connections to potential donors, sponsors, or community partners that can support fundraising efforts.

Time management skills and being able to meet deadlines.

(job description may change over time)

Process for Submitting Interest

If you're interested in joining the EDS West Connect Board of Directors, please send your resume and a brief statement outlining your qualifications and passion for our mission to EDSWestConnect@gmail.com. We embrace candidates from diverse backgrounds who share our dedication to supporting individuals affected by EDS. Your involvement would help uphold our unwavering commitment to diversity, equity, and inclusion, which are integral to our mission and impact. Thank you for considering this opportunity to contribute meaningfully to our community.