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1 person is interested
Fundraising & Grant Writing Volunteer
ORGANIZATION: SPATA FOUNDATION INC
Please visit the new page to apply.
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1 person is interested
We are a non-profit actively working on finding a cure for our children affected by ultra-rare genetic conditions. We're currently trying to secure $50,000 for a project. We are looking for an experienced volunteer for to research, cultivate, and develop grant proposals and fundraising initiatives.
Additional activities include overseeing these processes to ensure compliance of funder requirements, and documents are collected and submitted according to grant deadlines.
1 More opportunity with SPATA FOUNDATION INC
Opportunities
About SPATA FOUNDATION INC
Location:
20 LLAMA TRL, PALM COAST, FL 32164, US
Mission Statement
The SPATA Foundation's Mission is to advocate, educate, and raise funds for research towards SPATA5 and SPATA5L1 Related Disorders. Our hope is that our efforts will help us better understand the function of the genes & lead to treatment for disorders related to these genes.
Description
The SPATA Foundation was began by the George family after their son Luca was diagnosed with SPATA5L1, an ultra-rare genetic condition characterized by epilepsy, hearing loss, developmental delay, and more. They began the foundation in November 2023 and have already secured mouse models for research & are working on translational studies to find a cure.
CAUSE AREAS
WHEN
WHERE
This is a Virtual Opportunity with no fixed address.
DATE POSTED
May 22, 2024
SKILLS
- Fundraising
- Grant Writing / Research
GOOD FOR
N/A
REQUIREMENTS
- Driver's License Needed
- Background Check
- Must be at least 18