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3 people are interested
PR /media for nonprofit 5k event
ORGANIZATION: Musella Foundation
Please visit the new page to apply.
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3 people are interested
We need immediate help promoting our event: UT Go Grey in May 5k to End Brain Cancer. Our event is on May 29th at Liberty Park in Salt Lake City. This is our 12th year and we are a small event looking to grow. We raise funds for brain cancer research and our goals include making connections with brain tumor patients and their loved ones, providing information and raising awareness. Our beneficiaries are the Musella Foundation and Huntsman Cancer Institute
We have a fun event that includes not just the 5K, but also a Kids Fun Run, kids activities/ crafts, booths with healing, wellness, and restorative modalities and products, prizes and awards for our participants and a Drawing.
We are looking for someone with any media connections, experience and who can help get out press releases, and PSA’s to the media immediately
Contact us for more information to get started.
Thanks!
More opportunities with Musella Foundation
No additional volunteer opportunities at this time.
About Musella Foundation
Location:
1100 Peninsula Blvd, Hewlett, NY 11557, US
Mission Statement
Public charity dedicated to helping brain tumor patients through emotional and financial support, education, advocacy and raising money for brain tumor research.
Description
Copayment Assistance Program:
Over $8.90 million (as of Nov 1, 2021) for patient assistance
Clinical Trials and Noteworthy Treatments for Brain Tumors: 1st online support group for brain tumors, on Compuserves, in 1993, and moved to virtualtrials.com, in 1996. Became a premier resource for brain tumor information, hosting online support groups, chat rooms, newsletters, articles, and the clinical trial database. Free video of brain tumor conferences in multimedia library on topics important for brain tumor patients.
Brain Tumor Virtual Trial: A study of brain tumor patients, what treatments they had and the outcomes. To identify combinations of treatments that work better (longer survival times, or higher quality of life) than current treatments. Promising combinations tested by our medical advisory board in standard clinical trials. We have a patient navigation program using XINFORM.
Raised money for research, given grants for important research projects, run letter writing campaigns with major impacts for patients, sped up approval for Temodar and Avastin, Dr. Musella testified at the FDA hearing to help get Avastin, Optune and Glialan approved! Convinced Medicare to pay for Temodar as well as Gliadel, currently trying to get a bill passed that will speed up the search for a cure and give brain tumor patients more treatment options quickly!
CAUSE AREAS
WHEN
WHERE
Liberty Park Salt Lake City, UT1300 S 655 ESalt Lake City, UT 84105
DATE POSTED
April 13, 2023
SKILLS
- Marketing & Communications (Mar/Com)
- Public Relations
- Journalism
- Community Outreach
- Networking
- Relationship Building
GOOD FOR
N/A
REQUIREMENTS
- Our event is on May 29th, time will be spent writing press releases, reaching out to contacts before the event and afterwards.
- These are a plus, but not necessary: Familiarity with Nonprofits, brain tumors/cancer or health issues, event planning