1 person is interested
ORGANIZATION: Turner Syndrome Foundation
Please visit the new page to apply.
1 person is interested
The preferred candidate(s) must have a desire to help others navigate the complex concerns from learning about the diagnosis, how to be diagnosed and the many concerns of raising a child and living with a complex condition. The client services team provides patients and caregivers with resources for the TS journey from prenatal care through all stages of life. Providing helpful information and support makes a difference in the client's awareness of resources, self-advocacy and the path to good health and overall well-being. While there may not always be a resource available to meet every need, the personal interaction with clients has proven to make a tremendous impact on the TSF mission, program development and most significantly on the longterm outcome of patients.
Volunteers will work out of the Hazlet, NJ office. Clients are supported virtually via web, phone, email or mail. Generally speaking, interaction with clients are held virtually.
The position may include the following tasks:
- Communicate with clients via phone, email, and by mail
- Create and manage individual cases
- Record detailed notes
- Assign and complete tasks
- Listen and communicate empathetically to find a resolution
- Research and share resources to meet the client's needs
- Collaborate with staff to provide exceptional client support
- Schedule followup tasks
- Excellent communications skills
- Professional demeanor
- Optimistic outlook
- Good listener
- Problem solver
- Pleasant personality
About Turner Syndrome Foundation
1 Bethany Road, Building 1, Suite 5, Hazlet, NJ 07730, US
Turner Syndrome affects 1 in 2,000 females. We can help! The goal of the Turner Syndrome Foundation is to support research initiatives and develop educational programs that will increase professional awareness and enhance medical care of those affected by Turner Syndrome. Early diagnosis and comprehensive treatments over the lifespan will lead to a brighter and healthier future for all young girls and women with Turner Syndrome.
Turner syndrome is a random mutation of chromosomes that occurs spontaneously at the time of conception and affects females. There is an absence of all or part of the second X chromosomes in some or all of the cells in the body. As an advocacy organization, our vision is to increase awareness, education and research for this complex disorder. Statistics show that Turner Syndrome takes the lives of 97% or more female fetuses. Our goal is to provide the 1-3% of survivors, who account to 1 in 2,000 females) with a chance at living a full and productive life while gaining additional knowledge and therapies for improvements. If a child does not exhibit classic TS characteristics, but is short and falling below the curve on the growth chart, has delayed pubertal development, presents verbally gifted, or expresses academic or social challenges, she may have TS. Diagnosis is confirmed with a Karyotype blood test. An endocrinologist will monitor the patient, screen for other conditions and provide specialized medical care, and treatments. Early interventions can promote a positive self-esteem and improved prognosis.
1-3% of Turner Syndrome babies will survive birth
10-20% of all miscarriages are babies lost to Turner Syndrome
For every 2,000 females, one will be affected by Turner Syndrome
1 Bethany RdBuilding 1, Suite 5Courtyard 1 EntranceHazlet, NJ 07730
May 6, 2022
- Customer Service
- Case Work / Management
- Patient Care
- People Skills
- Problem Solving
- Social Work
- Background Check
- Orientation or Training
- 10-15 hours per week - flexible days/hours