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ORGANIZATION: Chris Elliott Fund dba EndBrainCancer Initiative

  • 2 people are interested

The End Brain Cancer Initiative is looking for a person or persons to help our Website management team. Tasks would include updating elements on our website, assisting with compiling snipits and editing videos, creating and updating distributions from our contact database, assisting with creating our weekly eNewsletter, and assisting our IT team with social media posts and event marketing and support. We request that the applicant be comfortable with the GoDaddy or other website hosting platforms, and the Constant Contact or BenchmarkOne databases. We would be delighted if the applicant had experience/comfort with the healthcare and/or pharmaceutical industry especially in the Neurosciences space. Time is flexible, we can likely work with your schedule. The office is in Redmond, WA, but remote work (US only, please) is acceptable.

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About Chris Elliott Fund dba EndBrainCancer Initiative

Location:

16150 NE 85th St, #201, Redmond, WA 98052, US

Mission Statement

The EndBrainCancer Initiative | Chris Elliott Fund is dedicated to ensuring that all patients diagnosed with brain cancer, a brain tumor, or metastatic disease to the brain have equal access to advanced diagnostics, treatments, specialists and clinical trial participation. We believe that IMMEDIATE ACCESS to these options provides this patient community with the best HOPE for survival and sustained quality of life. We partner with industry, patients, researchers, advocacy groups, medical teams, hospital networks and others to educate patients and their caregivers so they can have empowered conversations with medical teams.

Description

The End Brain Cancer Initiative (EBCI), formerly the Chris Elliott Fund, has spent over 20 years working to support and guide patients and their caregivers through their medical journey after a diagnosis of Brain Cancer, a Brain Tumor, or Metastatic Disease to the Brain.

Glioblastoma (GBM) is the most common and aggressive form of adult brain cancer. Diagnosed patients have an average prognosis of 12-15 months with the current Standard of Care. Only about 5% of GBM patients will survive more than 5 years, a statistic that has not moved in over 50 years. We aim to educate patients and their caregivers on all forms of available treatment, including clinical trials. We believe that a fully informed patient can have a stronger conversation with their medical team and thereby gain access to better treatments. We hope that this will lead to improved survivorship and a better quality of life overall.

EBCI supports their mission through 3 service programs:

  • Patient Disease Education, Awareness and Outreach programs and events
  • Advocacy and Access Initiatives
  • "Direct Connect" Service Program

Our Patient Disease Education programs occur several times per year, sharing information on the latest developments in treatments, both drug and device, and in advanced diagnostic tools through our website, disease education materials, social media/digital services, speaking opportunities, and customized 1:1 virtual/in person meetings with patients/caregivers.

CAUSE AREAS

Advocacy & Human Rights
Computers & Technology
Advocacy & Human Rights, Computers & Technology

WHEN

We'll work with your schedule.

WHERE

This is a Virtual Opportunity with no fixed address.

SKILLS

  • Website Programming
  • Search Engine Optimization (SEO)
  • Video Production
  • Database Administration

GOOD FOR

N/A

REQUIREMENTS

  • Must be at least 18

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