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ORGANIZATION: Neurofibromatosis Midwest

  • 2 people are interested

Non profit walk being hosted at Capital Brewery. Basic set up, take down and all things inbetween.

1 More opportunity with Neurofibromatosis Midwest

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About Neurofibromatosis Midwest


473 Dunham Rd, Suite 3, St. Charles, IL 60174, US

Mission Statement

NF Midwest is committed to improving the lives of children, adults, and families impacted by neurofibromatosis. Our continued focus and foundation is on Clinics, Awareness, Research, Education and Support in the states of Illinois, Indiana, Iowa, Kentucky, Wisconsin, and the eastern half of Missouri. NF Midwest C.A.R.E.S.!


NF Midwest became an official non-profit in December of 1981 and was founded by parents who had children with the rare disorder neurofibromatosis, They were looking for treatments, clinics, education, support, and community. This is still the basis of NF Midwest's work today. We have funded research projects including the discovery of the NF gene in the 90s' and we've helped increase federal research. NF Midwest continues to support research to find treatments and ultimately a cure for NF. We also work with scientists, clinics, and pharmaceutical companies to improve care and represent the NF community. NF Midwest also works to educate and support the NF community in the Midwest. We provide support and education to people personally and via social media etc. We also hold educational seminars and webinars. Additionally, we send children with NF to camp, offer scholarships, and work to create future leaders.


Advocacy & Human Rights
Children & Youth
Advocacy & Human Rights, Children & Youth, Community


Sat May 21, 2022
09:00 AM - 12:00 PM


7734 Terrace Ave, MiddletonMiddleton, WI 53562







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