Grants Manager and Writer

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Recruiting Organization: The Stiff Person Syndrome Research Foundation

Join our team to make a difference in people’s lives in 2022.

This year will be a pivotal year for The SPSRF. In late 2021 we received a game-changing grant from the Chan Zuckerberg Initiative "Rare as One" program. This amazing support will allow us to build our organization in untold ways.

Our mission is to raise awareness and funds for research to find better treatments and a cure for Stiff Person Syndrome, which is a rare neurological disease, with no good treatments and no cure. We are connecting the SPS community around the world, showcasing patient stories, supporting science, and advocating for greater understanding of the causes of auto-immune disease.

We are seeking a part-time volunteer to serve as Grants Writer and Manager. This role will support The SPSRF in building a fundraising structure with the Board of Directors, leadership volunteers, and staff.

Grants Writer and Manager : Volunteer Role

Fully Remote

Start date: January 2022

● Maintain The SPSRF annual grants calendar, including all grant proposals and reporting deadlines for existing and prospective funders.

● Conduct monthly grants research and prospecting to identify new funding opportunities and present these opportunities to SPSRF leadership for review and consideration, including corporate sponsorship/funding opportunities.

● Preparation (strategizing, outlining, writing, and compiling proposal content) and submission of all grant proposals and reports identified in the grants calendar, including all required attachments and budgets. Circulate draft materials for timely review and editing by SPSRF staff prior to submission of all grants and reports.

● Report to The SPSRF Board of Directors as requested by the Founder and CEO.

● Attendance at and participation in other The SPSRF meetings, as requested by the Founder and CEO.

● Produce timely and comprehensive acknowledgements for all grants.

● This position reports to the Founder and CEO of The SPSRF.

Stipend ProvidedFalse

Training ProvidedFalse

Housing AvailableFalse

Language/Cultral Support AvailableFalse

Wheelchair AccessibleFalse

Fee RequiredFalse

Fee Amount: None

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389 5th Ave, 9th Floor, New York, NY 11109, US

Mission Statement

To bridge the gap between intention and action in order to bring about social impact.


Idealist is a leading online global resource for finding jobs in the nonprofit sector, as well as volunteer opportunities and graduate school programs for social impact.

Health & Medicine


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Bethesda, MD 20817







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