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Interview and film a racecar driver!

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TGCT Support

TGCT Support is a patient advocacy non-profit organization promoting awareness, education, and research into a rare tumor disease, known as tenosynovial giant cell tumor (TGCT). A racecar driver has agreed to give an interview about their diagnosis and experience with the disease. We are looking for someone to film the interview and read her the pre-determined questions. We have a cinematographer to edit the content. The driver is located in Ottawa/Bowmanville.


If you'd love the opportunity to spend a few hours with a racecar driver on a track, this is the volunteer ad for you!

More opportunities with TGCT Support

No additional volunteer opportunities at this time.

About TGCT Support

Location:

US HIGHWAY 46 WEST SUITE 202, WAYNE, NJ 07470, US

Mission Statement

The mission of TGCT Support is to enhance treatment options and quality of life for TGCT patients through patient-powered research, education, empowerment, and global advocacy efforts. TGCT Support is a program of the Life Raft Group.

Description

TGCT Support is comprised of a group of passionate individuals from the Tenosynovial Giant Cell Tumor (TGCT) community, previously known as pigmented villonodular synovitis (PVNS). We have identified a need for a central location to provide education and resources to our community. All of our resources are based on up-to-date scientific information for patients and caregivers, as well as the medical community.

Rare diseases, including TGCT, are often misdiagnosed, misunderstood and are not widely supported by research funding. Awareness is a key factor in resolving these issues.

TGCT advocates were looking for a home for TGCT patients where they can feel validated and receive information that may impact their care and quality of life. They turned to The Life Raft Group (LRG), a non-profit organization that supports patients with another rare disease, Gastrointestinal Stromal Tumor (GIST). The LRG has been a leader in the rare disease community for over 20 years. The LRG is providing guidance and collaboratively working with the TGCT community helping them to establish programs and platforms.
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The Life Raft Group is a 501 (c)(3) non-profit organization (tax id: 82-0547746) providing support through information, education, and innovative research to patients with rare diseases.

Advocacy & Human Rights
Health & Medicine
Media & Broadcasting

WHEN

Thu Sep 30, 2021 - Sat Nov 06, 2021

WHERE

3233 Concession Rd 10Bowmanville, ON L1C 3K6Canada

(44.0542,-78.68058)
 

SKILLS

  • Visual Arts
  • Video Production
  • Social Media / Blogging
  • Community Outreach

GOOD FOR

N/A

REQUIREMENTS

  • About an hour or so

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