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experienced Grant writer for a Hispanic immigrants advocates for kids with Muscular Dystrophy

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We are a small non-profit organization seeking for a experienced grant writer to help us raise funds for our

DMD is a debilitating rare disease that affects 1 in 3500-5000 US boys and 1 in 50M US girls. The sooner a patient is diagnosed with DMD the sooner they can receive care and improved quality of life. Often times parents miss the signs and symptoms of DMD which can lead to a later diagnosis. We want to reach undiagnosed, newly diagnosed and previously diagnosed Spanish speaking families to educate, inform and connect them to local resources.

The experienced grant writer will work directly with the Founder to identify prospective funding for the organization and submit proposals for funding. The grant writer primarily seeks out and applies for one-time or annual grants from external agencies, including government, pharmaceutical industry and private and public funding.

Duties (including but not limited to):

  • Identify and research grant funding opportunities.
  • Write, submit and manage grant proposals, under the direction of the Founder
  • Maintain proficient knowledge of organization’s history and programs.
  • Furnish prospective funders with supporting documents.
  • Report on all opportunities applied for and status.
  • Maintain records through our Initiative and external grant agency databases.
  • Cultivate on-going relationships with grant foundations.
  • Track and maintain all records regarding incentive compensation in coordination with the Treasurer.
  • Build and cultivate relationships with local, state and federal appointed and elected officials.
  • Cultivate and secure local, state and federal grants and other additional government funding.
  • Devote at least 5 hours weekly to grant writing responsibilities.
  • Other responsibilities may be assigned, as necessary.

Even though you will be starting as a volunteer position, once we start receiving funds we will be able to pay anyone and will be welcome to work internally and grow with us.

This is a remote position, no direct contact with anyone.

Requirements: PC or desktop and a telephone

1 More opportunity with AKARI FOUNDATION

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Mission Statement

Mission: To educate, empower & advocate to the Hispanic Immigrant community, help with Resources & education.


a non profit for kids with Muscular dystrophy Duchenne, we are dedicated to the immigrant and Hispanic communities with education in the disease, translations,
referrals to other organizations for specific needs. we focus in educational workshops but because the pandemic we switch to webinars, our dream is to be able to open an holistic therapy center. We are working with other organizations in advocacy for the disable, immigrant and HIspanic communities.

we are a 100% bilingual organization, all communication with our families is 100% in Spanish and with other organizations, companies etc is mostly in English.

Advocacy & Human Rights
Children & Youth
Immigrants & Refugees


We'll work with your schedule.


This is a Virtual Opportunity with no fixed address.


  • Financial Planning
  • Case Work / Management
  • Child Advocacy
  • Donor Management
  • Fundraising
  • Grant Writing / Research




  • as much as you can help
  • we are very small non profit of 3 people, we can work with your time and can always accommodate to your needs. we don't need you to be an expert but to have the commitment to do the work.

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