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Las Vegas Area Advisory Council and Planning Committee

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Spina Bifida Association

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The Spina Bifida Association of Las Vegas is looking for dedicated individuals to join our volunteer Advisory Council. SBA of Las Vegas is committed to building a better and brighter future for all people impacted by Spina Bifida and we need your help.

Now is a great time to support your local community by volunteering with a great group. The Advisory Council serves to connect the Spina Bifida community through virtual and in person events as well as offers valuable services and educational opportunities.

The Advisory Council meets on the 3rd Tuesday of the month for a to discuss and plan activities. They play a vital role in the success of:

  • Fundraisers - We are creating two new fundraisers for 2022
  • Game nights - Virtual for now
  • New parent support
  • Children Activities
  • In person activities when appropriate

If you are interested in learning more about how you can make a difference please contact Chapter Manager Christina Berlin- cberlin@sbaa.org

1 More opportunity with Spina Bifida Association

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About Spina Bifida Association

Location:

1600 Wilson blvd, suite 800, Arlington, VA 22209, US

Mission Statement

The mission of the Spina Bifida Association is to build a better and brighter future for all those impacted by Spina Bifida.

Description

Spina Bifida is the most common permanently disabling birth defect that is associated with life. Approximately 166,000 individuals in the United States have Spina Bifida.

It’s a type of neural tube defect (NTD) that occurs when a baby’s neural tube fails to develop or close properly - the literal meaning for Spina Bifida is "split spine." Typically occurring within the first 28 days of pregnancy while the neural tube is forming, Spina Bifida often occurs before a woman knows she is pregnant.

Commonly referred to as the "snowflake condition" of birth defects because no two cases are the same, Spina Bifida can range from mild to severe. The severity depends on everything from the size of the opening to the location on the spine.

Children & Youth
Health & Medicine
People with Disabilities

WHEN

We'll work with your schedule.

WHERE

This is a Virtual Opportunity with no fixed address.

SKILLS

  • Youth Services
  • Event Design & Planning
  • Event Planning / Management
  • Donor Management
  • Fundraising
  • Grant Writing / Research

GOOD FOR

N/A

REQUIREMENTS

  • Must be at least 25
  • Minimum or four hours each month. This includes monthly meeting.

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