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Office Help
ORGANIZATION: Turner Syndrome Foundation
Please visit the new page to apply.
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DONATE TO THIS
ORGANIZATION -
8 people are interested
Work locally (NJ-US only) and serve globally
If you are eager to make a difference, this may be the opportunity for you!
The Turner Syndrome Foundation is seeking someone for a long-term volunteer position in our Hazlet office. The candidate will be oriented about the mission and trained to perform program assistant responsibilities that may include, but are not limited to, the following:
- Preparing mailers
- Data entry
- Online research
- Answering and making phone calls
- Writing and replying to emails
Founded in 2009, The Turner Syndrome Foundation (TSF), a 501(c)3 non-profit advocacy organization, provides education, information, and support to advance this cause, reduce the age of diagnosis and improve care outcomes. Turner Syndrome Foundation is committed to the power of education to help remove all social and financial barriers providing every individual the dignity of good healthcare, education, and support. Information, programs, and resources are generally provided without patient or caregiver membership fees. TSF is primarily led by talented volunteers.
Complete this application:
https://turnersyndromefoundation.org/volunteer_take_action/talent-application/
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Opportunities
About Turner Syndrome Foundation
Location:
1 Bethany Road, Building 1, Suite 5, Hazlet, NJ 07730, US
Mission Statement
Turner Syndrome affects 1 in 2,000 females. We can help! The goal of the Turner Syndrome Foundation is to support research initiatives and develop educational programs that will increase professional awareness and enhance medical care of those affected by Turner Syndrome. Early diagnosis and comprehensive treatments over the lifespan will lead to a brighter and healthier future for all young girls and women with Turner Syndrome.
Description
Turner syndrome is a random mutation of chromosomes that occurs spontaneously at the time of conception and affects females. There is an absence of all or part of the second X chromosomes in some or all of the cells in the body. As an advocacy organization, our vision is to increase awareness, education and research for this complex disorder. Statistics show that Turner Syndrome takes the lives of 97% or more female fetuses. Our goal is to provide the 1-3% of survivors, who account to 1 in 2,000 females) with a chance at living a full and productive life while gaining additional knowledge and therapies for improvements. If a child does not exhibit classic TS characteristics, but is short and falling below the curve on the growth chart, has delayed pubertal development, presents verbally gifted, or expresses academic or social challenges, she may have TS. Diagnosis is confirmed with a Karyotype blood test. An endocrinologist will monitor the patient, screen for other conditions and provide specialized medical care, and treatments. Early interventions can promote a positive self-esteem and improved prognosis.
1-3% of Turner Syndrome babies will survive birth
10-20% of all miscarriages are babies lost to Turner Syndrome
For every 2,000 females, one will be affected by Turner Syndrome
CAUSE AREAS
WHEN
WHERE
1 Bethany RdBuilding 1, Suite 5Courtyard 1 EntranceHazlet, NJ 07730
DATE POSTED
October 24, 2023
SKILLS
- Administrative Support
- CSR / Volunteer Coordination
- Multi-Tasking
- Customer Service
- Verbal / Written Communication
- Data Entry
GOOD FOR
N/A
REQUIREMENTS
- Background Check
- Must be at least 21
- 4 months+
- May lead to full-time permanent employment.