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Program Assistance

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Turner Syndrome Foundation

  • 4 people are interested
Be the Change

Work locally (NJ-US only) and serve globally

Are you currently unemployed and looking to return to work? Are you a recent grad searching for your first job? If you are eager to make a difference, this may be the opportunity for you!

The Turner Syndrome Foundation, Inc. (TSF), a nonprofit charitable organization, is seeking a dynamic program assistant who exudes an entrepreneurial approach to business, superior writing and interpersonal skills, knowledge of online applications and social media platforms. The candidate should exude confidence, and an eagerness to hone skills and responsibilities; including, program development and client engagement while working alongside a team of volunteers and reporting to the Executive Director.

The candidate will be oriented on the mission and trained to perform program assistant responsibilities, which may include the following:

  • Implement communication strategy across all media
  • Deliver key messaging and information with volunteers
  • Write and edit print and digital materials
  • Contribute and oversee content development, moderate social media and client engagement
  • Collaborate with ED to prepare for meetings and events; establish priorities and procedures
  • Maintain database, email lists and run reports
  • Talent recruitment, onboarding, and volunteer engagement, committees, and ad-hoc projects
  • Maintain calendars
  • Content coordination: blog, webpages, third-party applications
  • Create online activities, forms, petitions
  • Interpersonal communications via telephone, in writing, email, online or on zoom,
  • IT across all platforms and media outlets; Microsoft 365, Adobe, Salesforce, Analytics, SEO

Founded in 2009, The Turner Syndrome Foundation (TSF), a 501(c)3 non-profit advocacy organization, provides education, information, and support to advance this cause, reduce the age of diagnosis and improve care outcomes. Turner Syndrome Foundation is committed to the power of education to help remove all social and financial barriers providing every individual the dignity of good healthcare, education and support. Information, programs, and resources are generally provided without patient or caregiver membership fees. TSF has a small paid staff, and is primarily lead by talented volunteers.

Application Instructions

Please send resume, cover letter and salary requirements to info@tsfusa.org.
No phone calls please.

www.TurnerSyndromeFoundation.org
Office: 1 Bethany Rd, Bldg 1, Ste 5, Hazlet, NJ 07730

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About Turner Syndrome Foundation

Location:

1 Bethany Road, Building 1, Suite 5, Hazlet, NJ 07730, US

Mission Statement

Turner Syndrome affects 1 in 2,000 females. We can help! The goal of the Turner Syndrome Foundation is to support research initiatives and develop educational programs that will increase professional awareness and enhance medical care of those affected by Turner Syndrome. Early diagnosis and comprehensive treatments over the lifespan will lead to a brighter and healthier future for all young girls and women with Turner Syndrome.

Description

Turner syndrome is a random mutation of chromosomes that occurs spontaneously at the time of conception and affects females. There is an absence of all or part of the second X chromosomes in some or all of the cells in the body. As an advocacy organization, our vision is to increase awareness, education and research for this complex disorder. Statistics show that Turner Syndrome takes the lives of 97% or more female fetuses. Our goal is to provide the 1-3% of survivors, who account to 1 in 2,000 females) with a chance at living a full and productive life while gaining additional knowledge and therapies for improvements. If a child does not exhibit classic TS characteristics, but is short and falling below the curve on the growth chart, has delayed pubertal development, presents verbally gifted, or expresses academic or social challenges, she may have TS. Diagnosis is confirmed with a Karyotype blood test. An endocrinologist will monitor the patient, screen for other conditions and provide specialized medical care, and treatments. Early interventions can promote a positive self-esteem and improved prognosis.
1-3% of Turner Syndrome babies will survive birth
10-20% of all miscarriages are babies lost to Turner Syndrome
For every 2,000 females, one will be affected by Turner Syndrome

Advocacy & Human Rights
Employment
Women

WHEN

We'll work with your schedule.

WHERE

1 Bethany RdBuilding 1, Suite 5Courtyard 1 EntranceHazlet, NJ 07730

(40.41579,-74.17735)
 

SKILLS

  • Executive Admin
  • Marketing & Communications (Mar/Com)
  • Program Management
  • Grant Writing / Research
  • CSR / Volunteer Coordination
  • Verbal / Written Communication

GOOD FOR

N/A

REQUIREMENTS

  • Background Check
  • Must be at least 21
  • 4 months+
  • May lead to full-time permanent employment.

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