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Turner Syndrome Foundation

  • 4 people are interested

We are searching for skillful writers to raise awareness about Turner syndrome, a leading condition affecting girls and women (1 in every 2,000 females are affected by TS). Writers volunteering with TSF will be selected to engage with the community to share their story; ultimately, providing information about the diagnosis odyssey and unmet issues that affect their lives.

If you have interest in learning more about turner syndrome, please visit our website https://turnersyndromefoundation.org.

Skills & experience requirements:

-Interviewing people with compassion & sensitivity
-Writing/editing about the human condition
-Summarizing scientific information
-Researching from credible sources
-Portfolio of published material
-Networking

Candidates may apply online: https://turnersyndromefoundation.org/volunteer_take_action/talent-application/

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About Turner Syndrome Foundation

Location:

1 Bethany Road, Building 1, Suite 5, Hazlet, NJ 07730, US

Mission Statement

Turner Syndrome affects 1 in 2,000 females. We can help! The goal of the Turner Syndrome Foundation is to support research initiatives and develop educational programs that will increase professional awareness and enhance medical care of those affected by Turner Syndrome. Early diagnosis and comprehensive treatments over the lifespan will lead to a brighter and healthier future for all young girls and women with Turner Syndrome.

Description

Turner syndrome is a random mutation of chromosomes that occurs spontaneously at the time of conception and affects females. There is an absence of all or part of the second X chromosomes in some or all of the cells in the body. As an advocacy organization, our vision is to increase awareness, education and research for this complex disorder. Statistics show that Turner Syndrome takes the lives of 97% or more female fetuses. Our goal is to provide the 1-3% of survivors, who account to 1 in 2,000 females) with a chance at living a full and productive life while gaining additional knowledge and therapies for improvements. If a child does not exhibit classic TS characteristics, but is short and falling below the curve on the growth chart, has delayed pubertal development, presents verbally gifted, or expresses academic or social challenges, she may have TS. Diagnosis is confirmed with a Karyotype blood test. An endocrinologist will monitor the patient, screen for other conditions and provide specialized medical care, and treatments. Early interventions can promote a positive self-esteem and improved prognosis.
1-3% of Turner Syndrome babies will survive birth
10-20% of all miscarriages are babies lost to Turner Syndrome
For every 2,000 females, one will be affected by Turner Syndrome

Advocacy & Human Rights
Media & Broadcasting
Women

WHEN

We'll work with your schedule.

WHERE

This is a Virtual Opportunity with no fixed address.

SKILLS

  • Public Relations
  • Journalism
  • Social Media / Blogging

GOOD FOR

N/A

REQUIREMENTS

  • 3-5 hours per week for a minimum of 3 months

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