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12 people are interested
Blog Post Editors
ORGANIZATION: Turner Syndrome Foundation
Please visit the new page to apply.
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DONATE TO THIS
ORGANIZATION -
12 people are interested
We are seeking 2 experienced editors to support our blog. The purpose of the blog is to communicate health-based concepts simply to empower the Turner Syndrome community. While a health background is not required for the editors, it is preferred.
The editors should have excellent writing skills, with a keen eye for grammar in order to edit the writing of others. The editor will ensure that concepts are effectively communicated for a broad audience to understand. Additionally, the editors should have an ability to fact-check information using the references utilized in the blog post and outside sources. Each editor will be responsible for reviewing up to 4 blog posts per month, with at least 1 week to complete each edit.
Interested volunteers can complete TSF's volunteer application to get started
https://turnersyndromefoundation.org/talent-application/.
More opportunities with Turner Syndrome Foundation
No additional volunteer opportunities at this time.
About Turner Syndrome Foundation
Location:
1 Bethany Road, Building 1, Suite 5, Hazlet, NJ 07730, US
Mission Statement
Turner Syndrome affects 1 in 2,000 females. We can help! The goal of the Turner Syndrome Foundation is to support research initiatives and develop educational programs that will increase professional awareness and enhance medical care of those affected by Turner Syndrome. Early diagnosis and comprehensive treatments over the lifespan will lead to a brighter and healthier future for all young girls and women with Turner Syndrome.
Description
Turner syndrome is a random mutation of chromosomes that occurs spontaneously at the time of conception and affects females. There is an absence of all or part of the second X chromosomes in some or all of the cells in the body. As an advocacy organization, our vision is to increase awareness, education and research for this complex disorder. Statistics show that Turner Syndrome takes the lives of 97% or more female fetuses. Our goal is to provide the 1-3% of survivors, who account to 1 in 2,000 females) with a chance at living a full and productive life while gaining additional knowledge and therapies for improvements. If a child does not exhibit classic TS characteristics, but is short and falling below the curve on the growth chart, has delayed pubertal development, presents verbally gifted, or expresses academic or social challenges, she may have TS. Diagnosis is confirmed with a Karyotype blood test. An endocrinologist will monitor the patient, screen for other conditions and provide specialized medical care, and treatments. Early interventions can promote a positive self-esteem and improved prognosis.
1-3% of Turner Syndrome babies will survive birth
10-20% of all miscarriages are babies lost to Turner Syndrome
For every 2,000 females, one will be affected by Turner Syndrome
CAUSE AREAS
WHEN
WHERE
This is a Virtual Opportunity with no fixed address.
DATE POSTED
July 31, 2021
SKILLS
- Reading / Writing
- Copy Writing / Copy Editing
- Verbal / Written Communication
GOOD FOR
- People 55+
REQUIREMENTS
- Must be at least 18
- Orientation or Training
- Approximately 1 hour per week
- Access to a computer or tablet with internet connection.