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HUNTINGTONS DISEASE SOCIETY OF AMERICA - ARIZONA CHAPTER

  • A group opportunity. Invite your friends.
  • 1 person is interested

Huntington’s Disease Society of America - Arizona Chapter is looking for volunteers to fill various roles within our chapters. If you have a passion for helping people and want to support people living with Huntington's Disease, we'd love to hear from you! This opportunity is available to anyone living in Arizona.

Board of Directors: Our board of directors is responsible for leading HDSA's mission in Arizona and providing support for the thousands of families who are impacted by HD in our state. We are in search of new board members who are willing to volunteer their time for this important cause. Our board of directors meets every two weeks for an hour (via Zoom currently). Outside of these meetings, board members will help plan chapter events, secure sponsorships, educate the community about HD and contribute in any other way possible.

Chapter committees shall work on delegated responsibilities separately but will communicate with other committees to increase effectiveness and productivity. Each committee will identify a Chairperson, who will report directly to the Chapter President The Chapter President or Chair is responsible for ensuring that all committees are functioning effectively and working towards established goals. Previous experience in these areas is not necessary to serve on these committees. We are in need of willing community leaders for the following committees:

Development & Recruitment Committee - Will work to support the growth of our chapter through board development, volunteer and member recruitment, leadership development and team building activities. The Committee shall work alongside all other standing and special committees to build relationships with volunteers and to publicize and promote local opportunities.

Fundraising Committee - This committee will work to establish a fundraising plan that incorporates the HDSA Chapter Agreement, Approved Budget, Performance Standards, and Plan of Work. The Committee shall work with existing event committees on ways to meet and exceed fundraising goals every year. The Committee is responsible for the involvement of all of the Chapter Board Committee in fundraising activities (i.e.: securing sponsorship, local grants, etc.) and for monitoring all fundraising revenues and expenses.

Education & Training Committee - This committee is responsible for managing educational events, community outreach and facilitating HD trainings for local organizations. This committee helps to coordinate the local educational event to provide HD families, caregivers and healthcare professional with practical information about HD, as well as a forum to network with members of the community. The committee will apply for the HDSA Educational grant and adhere to grant guidelines.

1 More opportunity with HUNTINGTONS DISEASE SOCIETY OF AMERICA - ARIZONA CHAPTER

About HUNTINGTONS DISEASE SOCIETY OF AMERICA - ARIZONA CHAPTER

Location:

1776 N Scottsdale Rd, #10844, Scottsdale, AZ 85271, US

Mission Statement

HDSA is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease through community services, education, advocacy and research. As the Arizona Chapter, we are committed to supporting our HD community and continuing to fight for a cure. In the battle against Huntington's disease no one fights alone. At HDSA Arizona , family is everything.‚Äč

Description

Huntington’s disease (also called HD) is a fatal genetic brain disorder that causes the progressive breakdown of nerve cells. It deteriorates a person’s physical and mental abilities usually during their prime working years (30 to 50 years) and unfortunately there is no cure. HD is a family disease because every child of a parent with HD has a 50/50 chance of inheriting the faulty gene.

Through seven HDSA regions with 50 volunteer-based chapters and affiliates, 200+ support groups, we reach out across the nation to offer HD patients and their family’s guidance, encouragement, resource information and leadership opportunities. There are HDSA events, meetings, and seminars, as well as HDSA advocacy programs -- truly a place to care, share while we all work toward a cure.

Advocacy & Human Rights
Board Development
Community

WHEN

We'll work with your schedule.

WHERE

This is a Virtual Opportunity, with no fixed address.

SKILLS

  • Marketing & Communications (Mar/Com)
  • Advocacy
  • Fundraising
  • Grant Writing / Research
  • CSR / Volunteer Coordination
  • Community Outreach

GOOD FOR

  • People 55+
  • Group

REQUIREMENTS

  • Must be at least 18
  • Orientation or Training
  • Approximately 10 hours per month in addition to events

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