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CT Chapter Volunteer Board Member

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Huntington's Disease Society Of America-CT Chapter


Help the Huntington's Disease Society of America CT Chapter accomplish it's mission of improving the lives of everyone affected by Huntington's disease (HD) and their families.

Chapter board members help to determine the needs of the CT HD community through education, advocacy, support and research. This is accomplished through fundraising and awareness events throughout the year either in person or virtually. The Chapter collaborates with various community organizations and medical facilities in the state. Board meetings are held quarterly virtually with one face to face meeting at the annual Education Symposium. Commitment is 2 years with the opportunity to be reelected two more terms. Each board member must participate in at least one yearly event.

We are looking for people to help with communications, fundraising, board development, advocacy and educating the public and medical professionals about the disease.

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About Huntington's Disease Society Of America-CT Chapter


101 Deer Run Drive, Colchester, CT 06415, US

Mission Statement

The Huntington’s Disease Society of America is the largest 501(c)(3) non-profit volunteer organization dedicated to improving the lives of everyone affected by Huntington’s Disease.


Founded in 1968 by Marjorie Guthrie, wife of folk legend Woody Guthrie who lost his battle with HD, the Society works tirelessly to provide the family services, education, advocacy and research to provide help for today, hope for tomorrow to the more than 30,000 people diagnosed with HD and the 250,000 at-risk in the United States. Among the catalog of resources made possible by the organization, HDSA supports 39 Centers of Excellence at major medical facilities throughout the U.S., funds research into the biology of the disease to facilitate the development of treatments and cures, hosts more than 170 support groups for people with HD, their families, caregivers and people at-risk, and is the premiere resource on Huntington’s disease for medical professionals and the general public. The Society is comprised of 54 local chapters and affiliates across the country with its headquarters in New York City.

Health & Medicine


We'll work with your schedule.


This is a Virtual Opportunity, with no fixed address.


  • Fundraising
  • Grant Writing / Research
  • Community Outreach
  • Basic Computer Skills
  • Critical Thinking
  • Networking


  • People 55+


  • Must be at least 18
  • Flexible. Attend quarterly meetings. Help plan and facilitate 2 annual fundraising events and 1 educational event.

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