PARKINSON CANADA ADVISORY COUNCIL

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The opportunity

In this new and innovative position, the Parkinson Canada Advisory Council (PAC) Member will play a critical role in shaping the strategy and programs that address the unmet needs of patients and families affected by Parkinson’s. An "expert by experience", the PAC Member drives patient engagement across Parkinson Canada and provides insight and advice to key decision-makers.

Your contribution

As a Member of the Parkinson Advisory Council, you bring your passion to make a difference for people affected by Parkinson’s. Your empathetic and compassionate approach to building community elevates the diverse perspectives of people affected by Parkinson’s. As someone living with Parkinson’s disease, or with experience as a care partner or family member, you bring your expertise to the following responsibilities:

• Advise and make recommendations to the CEO on key programs and strategic decisions that address the unmet needs of patients and families impacted by Parkinson’s
• Inform the Parkinson Canada patient engagement strategy
• Promote inclusion of the perspectives of people affected by Parkinson’s disease across Parkinson Canada
• Champion the vision, mission, and initiatives of Parkinson Canada with the Parkinson community across Canada
• Engage with other Parkinson Canada volunteer committees

What is needed to succeed in this role

• Lived experience with Parkinson’s disease, or experience as a care partner or family member of someone with Parkinson’s disease
• Knowledge of Parkinson Canada’s resources, preferably through accessing them within the past two years
• Broad knowledge, networks, or connections within the Parkinson community
• Passionate and eager to make a difference
• Strong communication skills, including active listening
• Able to grow strong partnerships that grow the brand and mission of Parkinson Canada
• Dependable, responsive, and respectful of multiple points of view
• Experience with or interest in the Canadian political system, advocacy initiatives, or research and development, would be a strong asset
• Mentorship experience would be an asset
• Experience working with committees or advisory councils would also be an asset

Benefits for Parkinson Advisory Council Members

• Contribute to meaningful and lasting change for people affected by Parkinson’s
• Deepen knowledge of patient engagement, research, advocacy, communication, digital engagement, and facilitation
• Develop new relationships with others living with or affected by Parkinson’s disease
• Engage regularly with Parkinson Canada’s President and CEO to provide advice and feedback

APPLY ONLINE: https://www.parkinson.ca/listing/parkinson-advisory-council-member/