In this new and innovative position, the Parkinson Canada Advisory Council (PAC) Member will play a critical role in shaping the strategy and programs that address the unmet needs of patients and families affected by Parkinson’s. An "expert by experience", the PAC Member drives patient engagement across Parkinson Canada and provides insight and advice to key decision-makers.
As a Member of the Parkinson Advisory Council, you bring your passion to make a difference for people affected by Parkinson’s. Your empathetic and compassionate approach to building community elevates the diverse perspectives of people affected by Parkinson’s. As someone living with Parkinson’s disease, or with experience as a care partner or family member, you bring your expertise to the following responsibilities:
Advise and make recommendations to the CEO on key programs and strategic decisions that address the unmet needs of patients and families impacted by Parkinson’s
Inform the Parkinson Canada patient engagement strategy
Promote inclusion of the perspectives of people affected by Parkinson’s disease across Parkinson Canada
Champion the vision, mission, and initiatives of Parkinson Canada with the Parkinson community across Canada
Engage with other Parkinson Canada volunteer committees
What is needed to succeed in this role
Lived experience with Parkinson’s disease, or experience as a care partner or family member of someone with Parkinson’s disease
Knowledge of Parkinson Canada’s resources, preferably through accessing them within the past two years
Broad knowledge, networks, or connections within the Parkinson community
Passionate and eager to make a difference
Strong communication skills, including active listening
Able to grow strong partnerships that grow the brand and mission of Parkinson Canada
Dependable, responsive, and respectful of multiple points of view
Experience with or interest in the Canadian political system, advocacy initiatives, or research and development, would be a strong asset
Mentorship experience would be an asset
Experience working with committees or advisory councils would also be an asset
Benefits for Parkinson Advisory Council Members
Contribute to meaningful and lasting change for people affected by Parkinson’s
Deepen knowledge of patient engagement, research, advocacy, communication, digital engagement, and facilitation
Develop new relationships with others living with or affected by Parkinson’s disease
Engage regularly with Parkinson Canada’s President and CEO to provide advice and feedback
No additional volunteer opportunities at this time.
About Parkinson Canada
316-4211 Yonge Street, Toronto, Ontario M2P 2A9, CA
Our mission is to transform the lives of People Living with Parkinson’s. We do this through: - Research leading to the end of Parkinson’s. - Advocacy bringing the voices of Parkinson’s to the forefront. - Support helping people living with Parkinson’s live well through education.
Parkinson Canada is the national voice of Canadians living with Parkinson’s disease. From diagnosis to discovery, we guide the way for Canadians to live well with Parkinson’s disease through education, advocacy and support services. Our National Research Program funds innovative research to search for better treatments and a cure. A national registered charity, Parkinson Canada fulfils its mission through the generosity of donors and is an accredited organization under the Imagine Canada Standards Program.
Health & Medicine
We'll work with your schedule.
This is a Virtual Opportunity, with no fixed address.
December 16, 2020
Must be at least 18
Orientation or Training
This volunteer position has a time commitment of approximately six hours per month. All activities are carried out virtually.