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Social Media Guru for our 2021 Virtual March for Marrow CA 5K Run & Walk

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Aplastic Anemia MDS International Foundation

March for Marrow Patients & Families 2017

As patients and family members we are so busy taking care of our patients - or ourselves in this period of COVID-19. In order to promote our work on our 2021 Virtual March for Marrow California, which will include a Virtual 5K Run and Walk as well as an online raffle, we need a clever and committed Social Media Guru.

We have a lot to learn and would love to learn from younger, smarter and more clever young people from the Houston area.

In addition, we are trying to go paperless - although we do have a great flier featuring our 2021 Champion, Meghan Lambe, who went through a bone marrow transplant and is doing well. We are open to advice as to how best to use it. But it seems social media is the best way to go.

We want the word to be broadcast from So-Cal to No-Call. This is a Statewide Virtual event.

Our schedule for Saturday, 4/24/2021, Sunday, 4/25/2021, and Saturday, 5/1/2021, will run for about 2 hours, 9:00 am to 10:30 or 11:00 am.

Monday, 4/26/2021 to Friday, 4/30/2021, will only be 1 hour - perhaps 1 ½ hours.

There will be the Kick-Off including sounding the start of the 5K Run and Patient and Family Walk - complete with selfies. We will have a couple of doctors speak and a couple of patients telling their stories. We hope to attract a couple of high school groups - bands and or a cheerleading squad - all with proper social distancing.

During the week we will invite certain doctors, nurses, patients, celebrities to join us - we are busy recruiting now.

On Saturday, May 1, 2021, we will hold our Moment of Remembrance and Closing Ceremonies, catch up with our 5K Runners and have them log in their times and announce our Top Fundraisers and our Raffle or Auction WINNERS!

Contact our Chair, Stephanie Hamm, at stephanieforaamds@gmail.com.

National Social Media is:

Web Site: http:/www.aamds.org

Facebook: https://www.facebook.com/aamds

Twitter: https://twitter.com/aamdsif

Linked In: https://www.linkedin.com/company/aplastic-anemia-&-mds-international-foundation/about/

You Tube: https://www.youtube.com/user/AAMDSIF

Instagram: https://www.instagram.com/aamdsif/

Pinterest: https://www.pinterest.com/aplasticanemiaandmdsinternatio/

CALIFORNIA Social Media is:

Event Page on National Web Site: http://www.marchformarrow.org

Facebook: https://www.facebook.com/marchformarrowla/

Event on FB: https://www.facebook.com/events/3580925355328918

Twitter: https://twitter.com/ March4MarrowCA

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About Aplastic Anemia MDS International Foundation

Location:

4330 East West Hwy, Suite 230, Bethesda, MD 20814, US

Mission Statement

The Aplastic Anemia & MDS International Foundation (AA&MDSIF) is the world's leading non-profit health organization dedicated to supporting patients, their families and caregivers, living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH) and related bone marrow failure diseases. The Aplastic Anemia & MDS International Foundation provides answers, support and hope to thousands of patients and their families around the world.

Description

Founded in 1983, the Aplastic Anemia & MDS International Foundation is celebrating 25+ years of service as a recognized and respected leader in patient education, advocacy and research. The AA&MDSIF is supported through individual contributions from grateful patients, families and friends, as well as foundations and corporations.

Community
Health & Medicine
Media & Broadcasting

WHEN

We'll work with your schedule.

WHERE

This is a Virtual Opportunity, with no fixed address.

SKILLS

  • Marketing & Communications (Mar/Com)
  • Public Relations
  • Interactive/Social Media/SEO

GOOD FOR

  • Teens
  • People 55+
  • Group

REQUIREMENTS

  • Must be at least 18
  • Once our web page is live and everything is updated (January 14, 2021) we want to start posting everywhere on social media, So-Cal to No Cal. Plan on 8 hours each week. You will be part of a 4-6 person team.
  • We need to make sure we have coordinated messaging. There will be a brief virtual training via Zoom.

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