Children and young adults from around the world have been diagnosed with a rare and incurable Chromosome 8p disorder. This disorder is hard to diagnose and can affect every cell in a person’s body. Project 8p is a nonprofit organization raising research funds, building a family support network and designing standards of care for the medical community.
Being new, we have work to do, and grant writing is too heavy a lift to do alone. We've identified some amazing opportunities, but need help crafting requests.
No additional volunteer opportunities at this time.
About PROJECT 8P FOUNDATION
Location:
600 3RD AVE FL 42, NEW YORK, NY 10016, US
Mission Statement
Creating a path to treatment for chromosome 8p disorders through research, community, and intelligent information.
Description
Project 8p Foundation is a 501(c)(3) nonprofit organization that is researching 8p disorders to find treatment options and give meaningful answers to those affected and their families. We are patient-led. Currently, there is no cure for 8p disorders, nor is there a standard course of treatment. Project 8P is the only organization dedicated to funding research to uncover treatment for chromosome 8p disorder. Chromosome 8p is a rare genetic condition with approximately 350 patients around the world and counting. A chromosome disorder typically impacts every cell in your body, not just in one organ of your body, but often your entire human system. Right now, science does not have the means to treat this condition. The good news is that the scientific community is making substantial progress and together with Project 8p, we are going to do everything we can to help.
Children & Youth
Health & Medicine
WHEN
We'll work with your schedule.
WHERE
This is a Virtual Opportunity, with no fixed address.
(0.000,0.000)
DATE POSTED
December 10, 2020
SKILLS
Technical Writing
Copy Writing / Copy Editing
GOOD FOR
People 55+
REQUIREMENTS
Must be at least 18
We figure you'll be new to our mission, so estimate that each grant you cecide to help with (from 1 grant to 4), will take about 5-8 hours.
