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RGPRS Data Manager

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Rare Genomics Institute

  • 9 people are interested

RG Patient Research Services (PRS) is an initiative of Rare Genomics Institute (RG) that aims to advance research beyond genome sequencing for some of the most challenging rare diseases. Our research model involves in-depth genetic analysis informed by comprehensive and well-defined medical phenotypes for each patient that is carried out by our in house team of PhD-trained volunteer analysts. We are looking for a liaison to help serve as a data manager. Helping rare disease families is an extremely rewarding experience. However, the ability to promptly carry out responsibilities of the job is essential.


  • Manage receipt of data from patients and laboratories
  • Manage patient data on RG patient database and data portal


  • Bachelor’s Degree
  • Demonstrated experience in handling patient data
  • Experience with handling genomic data and reporting platforms
  • Well-organized and detail oriented; willing to take on additional responsibilities and challenges.
  • Exceptional communication skills
  • Experience or interest in the medical, research and non-profit field

2 More opportunities with Rare Genomics Institute

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About Rare Genomics Institute


8504 Firestone Blvd., #198, Downey, CA 90241, US

Mission Statement

At RG, we are more than just an organization. We are a community dedicated to helping rare disease patients find hope for a cure. We work alongside patients and their families, providing them with the necessary tools, knowledge, and connections so that they can better understand the cause of their disease. We believe that every patient deserves more out of life.


Want to be part of an exciting startup biotech helping children with rare diseases? Want to make an impact for the millions of children and adults that are living with rare disease? Rare Genomics Institute are helping those with rare genomic diseases get access to genomic sequencing and the latest biotechnology research that can help these people who literally have nowhere else to turn get closer to an answer that has been elusive for all of their lives. Come join us!

We have been featured in TED, Bloomberg, and Huffington Post, among others.

Check out our website, like us on Facebook, and follow us on Twitter!

Children & Youth
Health & Medicine


We'll work with your schedule.


This is a Virtual Opportunity, with no fixed address.


  • Business Analysis
  • Market Research / Analysis




  • 5-10 hours per week

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