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40 people are interested
RGPRS Data Manager
ORGANIZATION: Rare Genomics Institute
Please visit the new page to apply.
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40 people are interested
RG Patient Research Services (PRS) is an initiative of Rare Genomics Institute (RG) that aims to advance research beyond genome sequencing for some of the most challenging rare diseases. Our research model involves in-depth genetic analysis informed by comprehensive and well-defined medical phenotypes for each patient that is carried out by our in house team of PhD-trained volunteer analysts. We are looking for a liaison to help serve as a data manager. Helping rare disease families is an extremely rewarding experience. However, the ability to promptly carry out responsibilities of the job is essential.
Responsibilities
- Manage receipt of data from patients and laboratories
- Manage patient data on RG patient database and data portal
Qualifications
- Bachelor’s Degree
- Demonstrated experience in handling patient data
- Experience with handling genomic data and reporting platforms
- Well-organized and detail oriented; willing to take on additional responsibilities and challenges.
- Exceptional communication skills
- Experience or interest in the medical, research and non-profit field
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About Rare Genomics Institute
Location:
8504 Firestone Blvd., #198, Downey, CA 90241, US
Mission Statement
At RG, we are more than just an organization. We are a community dedicated to helping rare disease patients find hope for a cure. We work alongside patients and their families, providing them with the necessary tools, knowledge, and connections so that they can better understand the cause of their disease. We believe that every patient deserves more out of life.
Description
Rare Genomics Institute (RGI) is a nonprofit organization dedicated to helping rare disease
patients find a diagnosis, treatment, and pathway to a cure. Through personalized research
projects, RGI provides access to world leading medical institutions and scientists to conduct
genomic sequencing, coordinates with clinicians and counselors to interpret findings, and offers an
online crowd-funding platform to deliver financial solutions. RGI also supports rare disease
advocacy by fostering an online community of rare disease patients and supporting rare disease
research through a yearly grant competition.
Since being founded in 2011, RGI has completed over 300 genetic sequencing and analysis
projects, assisted patients fund over $3.5 million worth of genomic sequencing, discovered 8
unique genetic mutations in-house, given over $2 million dollars in grants to researchers on rare
disease, and developed an online community with over 10,000 rare disease members.
Through volunteers, RGI is able to slowly push science and health care forward to meet the needs
of patients affected by rare diseases. To learn more about RGI check out our website, like us on
Facebook, and follow us on Twitter!
CAUSE AREAS
WHEN
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This is a Virtual Opportunity with no fixed address.
DATE POSTED
April 20, 2021
SKILLS
- Business Analysis
- Market Research / Analysis
GOOD FOR
N/A
REQUIREMENTS
- 5-10 hours per week