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Looking for an 8p Board Member!

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PROJECT 8P FOUNDATION

  • 4 people are interested
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Imagine changing the future for hundreds of families who have a child with a rare genetic condition that typically impacts every cell in their body, not just in one organ in the body, but often their entire human system. Imagine advocating, networking, taking part in cutting edge research, and sharing the great work of Project 8p. Well, let's turn visions into realities -- you can become a force for good by joining the board of Project 8p!

Project 8p is a 501(c)(3) nonprofit organization that is researching 8p disorders to find treatment options and give meaningful answers to those affected and their families. We are patient-led. Currently, there is no cure for 8p disorders, nor is there a standard course of treatment. Project 8p is the only organization dedicated to funding research to uncover treatment for chromosome 8p disorder.

Right now, science does not have the means to treat this condition. The good news is that the scientific community is making substantial progress and together with Project 8p, we are going to do everything we can to help.

We are currently seeking new board members to add to our current board of experts and caring individuals: https://project8p.org/leadership/

If you have any one or more of the following specialties, please consider joining our board of directors and changing the life of a child and his/her family:

Fundraising

Writer/Researcher

Marketing/Communications/Social media

Technology / Developing tools for disease progression, software, research and working with technology vendors

Finance

Bookkeeping

Legal

Pharmaceutical

Clinical Development

Business Development and/or Entrepreneurial

Hospital Administration (experience in IRB)

Patient Engagement

Senior Genetic Counselor


You don't need to be an expert, or even know a lot about 8p....you just need to be a good human and care about children. We can teach you what you need to know and bring you into this wonderful rare disease community.

More opportunities with PROJECT 8P FOUNDATION

No additional volunteer opportunities at this time.

About PROJECT 8P FOUNDATION

Location:

600 3RD AVE FL 42, NEW YORK, NY 10016, US

Mission Statement

Creating a path to treatment for chromosome 8p disorders through research, community, and intelligent information.

Description

Project 8p Foundation is a 501(c)(3) nonprofit organization that is researching 8p disorders to find treatment options and give meaningful answers to those affected and their families. We are patient-led. Currently, there is no cure for 8p disorders, nor is there a standard course of treatment. Project 8P is the only organization dedicated to funding research to uncover treatment for chromosome 8p disorder. Chromosome 8p is a rare genetic condition with approximately 350 patients around the world and counting. A chromosome disorder typically impacts every cell in your body, not just in one organ of your body, but often your entire human system. Right now, science does not have the means to treat this condition. The good news is that the scientific community is making substantial progress and together with Project 8p, we are going to do everything we can to help.

Advocacy & Human Rights
Children & Youth
Health & Medicine

WHEN

We'll work with your schedule.

WHERE

600 Third Avenue42nd FloorNew York, NY 10016

(40.74932,-73.97591)
 

SKILLS

  • Children Medical Services
  • Public Relations
  • Brand Development & Messaging
  • Sales Marketing
  • Pathology
  • Pharmacology

GOOD FOR

  • People 55+

REQUIREMENTS

  • Driver's License Needed
  • Must be at least 18
  • Orientation or Training
  • Our Board currently meets one time per month for 1.5 hours, with light work in between meetings. You can meet virtually or in-person (right now, we are exclusively virtual).

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